"I too was on the look out for a very long time for a good nutritionist for my son who is non ambulatory plus a vegetarian.You find broad general guidelines about it ( read on the cure duchenne organization ) but you have to work it out with a…"
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Sarada Kuchibhotla
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- Kuwait, Ahmadi governate
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Sarada Kuchibhotla's Discussions
breathing issues
Started this discussion. Last reply by Sarada Kuchibhotla Mar 16, 2018. 2 Replies 0 Favorites
My son who is aged 20 years has lot of breathing issues.Although he is on a trilogy unit at night time which has helped him sleep better relatively than before, yet whenever winter sets in or if it…Continue
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Sarada Kuchibhotla replied to Sarada Kuchibhotla's discussion breathing issues"Thank You. my son uses trilogy on bipap settings with humidifier.
he used zyrtec and nasal spray .However the sprays don't agree with him as he feels a burning sensation when he uses them.
shall check with his pulmonoligst about the mouth…"
Jason Darienzo replied to Sarada Kuchibhotla's discussion breathing issues"For stuffed nose my brother takes zyrtec and a nasal spray and when really congested zyrtec with decongestant. Try using try heated humidifier attached to trilogy the cold air could cause inflammation .
I use the trilogy 24/7 as a bi-pap at…"
Sarada Kuchibhotla posted a discussionbreathing issues
My son who is aged 20 years has lot of breathing issues.Although he is on a trilogy unit at night time which has helped him sleep better relatively than before, yet whenever winter sets in or if it is cold or chill outdoors he has either a nose block or throat congestion and if neither, he complains that the mask is not proper and air is not entering his nostrils fully .Hence he often gets up tired , feels lightheaded at times , has headaches which adversely affect his studies. all test have…See More
Profile Information
- Name(s) of child(ren)/individual(s) with Duchenne:
- one
- Age(s) of child(ren)/individual(s) with Duchenne:
- 19 or older
- City:
- kuwait
- State:
- Kuwait
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