"This is so very infuriating to me. I cannot believe that in today's world schools are still lacking behind in providing assistance for kids with disabilities.
I meet yearly for Nicolas' IEP meetings, and I am very lucky to have…"
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Sara Savalli
- 33, Female
- lansing, MI
- United States
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Sara Savalli's Discussions
writing assignments
Started this discussion. Last reply by Michelle Gonzales Mar 1. 5 Replies 0 Favorites
wheelchair ramp
Started this discussion. Last reply by Sara Savalli Mar 1. 2 Replies 0 Favorites
safety grab bars
Started this discussion. Last reply by Teri M. Renken Feb 8. 1 Reply 0 Favorites
Sara Savalli's Page
Latest Activity
Sara Savalli replied to Sara Savalli's discussion writing assignments"thank you very much, i wish they would let him use the computer more for stuff, but they told me they aren't doing much with computers only for older kids with ot, my sisters got him a kindle fire for help with reading and does help, but not…"
Andrea Cleary replied to Sara Savalli's discussion writing assignments"We asked (and now the teachers added it to his IEP, since it worked out so well) if our son could dictate some of his assignments, either directly into a recorder, or for me or his school aid to type it out. They just ask to see his rough copy or…"
Susan Rathfelder replied to Sara Savalli's discussion wheelchair ramp"How about something like this: http://www.lowes.com/pd_96650-1681-67304_0__?productId=3185621&Ntt=non+slip+tape+for+stairs&pl=1¤tURL=%2Fpl__0__s%3FNtt%3Dnon%2Bslip%2Btape%2Bfor%2Bstairs&facetInfo=
It also comes in rolls I…"
Liisa Underwood replied to Sara Savalli's discussion writing assignments"Sara, Lori has some great suggestions. My son is only 6.5 and he cannot keep up with the writing in first grade. The IEP requires that he is not to be required to write beyond showing he understands the material. In fact, he is not…"
Teri M. Renken replied to Sara Savalli's discussion safety grab bars"For the toileting situation, We found that having a commode over the stall of the toilet worked best. This is because it was easier for my son to push up than to pull up. Also, the commode is higher up than the toilets usually are so it isn't…"
Profile Information
- Name(s) of child(ren)/individual(s) with Duchenne:
- Jonathan Savalli
- Age(s) of child(ren)/individual(s) with Duchenne:
- 7-12
- City and State:
- lansing, MI
- Country:
- USA
Sara Savalli's Photos
Comment Wall (9 comments)
- At 3:57pm on March 5, 2009,
Leslie Guzman said… - Sara, If you want to come to Cincinnati, you can stay with us if you want.
Take care,
Leslie
- At 8:27am on January 12, 2009,
Lisa Jones said… - The first doctor who came in the room for pulmonary thought we should do a sleep study next time, but Dr. Meade said he didn't think that was necessary at this point with his pulmonary function studies being so good. So he suggested the Oxygen saturation study to be done at home during sleep. Bradley will get an MRI of the heart every year.
- At 12:07am on January 12, 2009, Lisa Jones said…
- I think I remember you now. You spoke very briefly to us. How did things go with Johnathon's appointments?
- At 7:10pm on January 11, 2009, Lisa Jones said…
- Some of your pictures look familiar. We did have Sky, Bradley's service dog with us both days at the hospital.
- At 1:29am on June 28, 2008, Sara Savalli said…
- I have family in grand rapids, yes we are doing the ptc trial it's like a year long, jonathan is 6. do you go to the doctors in grand rapids? i beleive madeline would be her name because i think that is where she went, we saw her a couple times in cincinatti before she left.
- At 8:55pm on June 27, 2008,
DeAnne Friar said… - Hi there, Sara. We are only about an hour away, in Grand Rapids. Are you doing a trial of PTC124. How long does Jonathan stay on it. How old is he. My Kyle wil be 4 on July 28 adn Kevin is 8--both have DMD.
- At 6:24pm on June 20, 2008, Sara Savalli said…
- we finally got ours on, on friday also, it was redicilus, we had to go stay with other people for the week, it was not fun, expecially with trying to remember everything to take over there with us each night. jonathan started ptc124 about 2 weeks ago, it's going well.
- At 1:11pm on June 10, 2008,
Karen Barnett said… - Hi Sara,
We are without power still too! They are saying it might not get restored until Friday! If it wasn't for our generator I would be out of here with my kids.
- At 12:16am on June 8, 2008,
Tina Klingaman said… - Hi Sara,
My name is Tina Klingaman and I live in Tekonsha, MI. Just thought I would say hello since we are both from Michigan.
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Events
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Paint for Peyton to end Duchenne
June 8, 2012 from 6:30pm to 7:30pm – Spirited Art
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