Sara Savalli
  • 39, Female
  • lansing, MI
  • United States
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Sara Savalli's Friends

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Sara Savalli's Discussions

writing assignments

Started this discussion. Last reply by wainaina muiruri Jul 5, 2014. 8 Replies

wheelchair ramp

Started this discussion. Last reply by Sara Savalli Mar 1, 2012. 2 Replies

safety grab bars

Started this discussion. Last reply by Teri M. Renken Feb 8, 2012. 1 Reply

 

Sara Savalli's Page

Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
Jonathan Savalli
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
lansing, MI

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Comment Wall (9 comments)

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At 3:57pm on March 5, 2009, Leslie Guzman said…
Sara, If you want to come to Cincinnati, you can stay with us if you want.

Take care,

Leslie
At 8:27am on January 12, 2009, Lisa Jones said…
The first doctor who came in the room for pulmonary thought we should do a sleep study next time, but Dr. Meade said he didn't think that was necessary at this point with his pulmonary function studies being so good. So he suggested the Oxygen saturation study to be done at home during sleep. Bradley will get an MRI of the heart every year.
At 12:07am on January 12, 2009, Lisa Jones said…
I think I remember you now. You spoke very briefly to us. How did things go with Johnathon's appointments?
At 7:10pm on January 11, 2009, Lisa Jones said…
Some of your pictures look familiar. We did have Sky, Bradley's service dog with us both days at the hospital.
At 1:29am on June 28, 2008, Sara Savalli said…
I have family in grand rapids, yes we are doing the ptc trial it's like a year long, jonathan is 6. do you go to the doctors in grand rapids? i beleive madeline would be her name because i think that is where she went, we saw her a couple times in cincinatti before she left.
At 8:55pm on June 27, 2008, DeAnne Friar said…
Hi there, Sara. We are only about an hour away, in Grand Rapids. Are you doing a trial of PTC124. How long does Jonathan stay on it. How old is he. My Kyle wil be 4 on July 28 adn Kevin is 8--both have DMD.
At 6:24pm on June 20, 2008, Sara Savalli said…
we finally got ours on, on friday also, it was redicilus, we had to go stay with other people for the week, it was not fun, expecially with trying to remember everything to take over there with us each night. jonathan started ptc124 about 2 weeks ago, it's going well.
At 1:11pm on June 10, 2008, Karen Barnett said…
Hi Sara,
We are without power still too! They are saying it might not get restored until Friday! If it wasn't for our generator I would be out of here with my kids.
At 12:16am on June 8, 2008, Tina Klingaman said…
Hi Sara,
My name is Tina Klingaman and I live in Tekonsha, MI. Just thought I would say hello since we are both from Michigan.
 
 
 

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