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Sanja Kogelnik
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  • Maribor
  • Slovenia
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  • Sai Chand. Gurujala
  • Goran Vasovic
  • Shelly
  • Nadja
  • Slaven Pasalic
  • Moein

Sanja Kogelnik's Discussions

Nicotinamide riboside

Started this discussion. Last reply by Sanja Kogelnik Feb 10. 18 Replies

I read a lot lately about vitamin Nicotinamide riboside and I was wondering if anyone ever tried this on  child , and in what doses?Here is  link of  one article...…Continue

Statins and muscels

Started this discussion. Last reply by Jason Darienzo Oct 17, 2016. 1 Reply

What do you think about?…Continue

 

Sanja Kogelnik's Page

Latest Activity

Sanja Kogelnik replied to Geraldine Coolidge's discussion Exon 44 Deletion
"Hi Sai, Unfortunately, in your case, exon skipping is not an option.  But Ezutromid is!!! It is not mutation specific, if all goes according to plan Ezutromid can reach market in 2020.  There is many therapies on clinical trial who Will…"
Feb 13
Sanja Kogelnik replied to Galia Ben Ishay's discussion Tamoxifen
"This is encouraging news. So this is yet another option for the treatment of DMD. Now that your son is taking Tamoxifen does he take corticosteroids or specific vitamins such as enzyme Q 10, extract of green tea, fish oil ...?"
Feb 12
Sai Chand. Gurujala left a comment for Sanja Kogelnik
"Thank you Sanja"
Feb 10
Sanja Kogelnik replied to Galia Ben Ishay's discussion Tamoxifen
"Dear Galia, thanks for sharing this great news ;)"
Feb 10
Sanja Kogelnik replied to Sanja Kogelnik's discussion Nicotinamide riboside
"Hi Sai, As far as I know, the vitamin is not mutation specific... so  yes, you can give him :)  "
Feb 10
Sai Chand. Gurujala replied to Sanja Kogelnik's discussion Nicotinamide riboside
"Hi Sanja, My nephew was diagnosed with DMD 2016. Duplication exons of 2 to 4. Can I give Nicotinamide riboside to my nephew."
Feb 10
Goran Vasovic favorited Sanja Kogelnik's profile
Feb 6
Goran Vasovic replied to Sanja Kogelnik's discussion Nicotinamide riboside
"Thanks so much ! Hvala :-) I sent you a private message, so pls check and reply if you can. All the best from Serbia!"
Feb 6
Sanja Kogelnik replied to Sanja Kogelnik's discussion Nicotinamide riboside
"Hey Goran, his email address is : johan.auwerx@epfl.ch I think he Will advice you to take 250mg daily, but if you notice in the article that i added  is writen: This rather speculative interpretation agrees with the results in Study #1 that…"
Feb 6
Goran Vasovic replied to Sanja Kogelnik's discussion Nicotinamide riboside
"Thanks a lot for these useful information. Our son is 5 years and we are about to try this one. Could you provide us with the email address of  prof Johan Auwerx because we would like to consult him about the dosage? Btw, where do you buy the…"
Feb 6
Antonis Nikolits replied to Sanja Kogelnik's discussion Nicotinamide riboside
"Thanks a lot for the great info!"
Feb 2
Sanja Kogelnik replied to Sanja Kogelnik's discussion Nicotinamide riboside
"Really? I am very happy to hear that, then it means that this is working. I'll link where I read about this weeks ;) http://alivebynature.com/about-niagen/"
Feb 1
Nadja replied to Sanja Kogelnik's discussion Nicotinamide riboside
"Yes Dr. Auwrex says 250 per day but you need a high dosage and to give more is not dangerous I buy the one from throne 60 x 250 mg i think 50 Euro Where do you read this about the weeks? I think After 4 weeks max has become even stronger and better…"
Feb 1
Sanja Kogelnik replied to Sanja Kogelnik's discussion Nicotinamide riboside
"For now I will give as much as dr. Auwerx recommended. This brand is good, but contains only 60 capsules, each capsule contains 125mg. I read that the brand is not important, they are only different prices and doses. I also read that in one clinical…"
Feb 1
Nadja replied to Sanja Kogelnik's discussion Nicotinamide riboside
"Yes i bought the same but i give him 500mg per day because it is not dangerous when you give more"
Feb 1
Sanja Kogelnik replied to Sanja Kogelnik's discussion Nicotinamide riboside
"I hawe wtitten with him too. He suggest 250 mg daily ( my son is 2y and have 12 kg). I buy Thorne Niacel-nicotinamide riboside."
Feb 1

Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
Nick
Age(s) of child(ren)/individual(s) with Duchenne:
0-3
City:
Maribor
State:
Slovenia

Comment Wall (2 comments)

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At 6:03am on February 10, 2017, Sai Chand. Gurujala said…

Thank you Sanja

At 11:07am on December 6, 2016, Benson Christopher said…

Hello baby
My Name is Christopher Benson,I was born on 15th of April 1975,My father was originated from United State of America,and I grew up in LA.I am the only son and child of my family,i am here to find a woman in my life hope is you..?please write me mail(christopher7benson@hotmail.com)i think i like you.
thanks
Christopher Benson.

 
 
 

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