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Sampreet
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  • Hyderabad
  • India
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  • Sai Chand. Gurujala

Sampreet's Discussions

Calorie needs

Started Apr 26 0 Replies

How can we estimate the calorie needs of a nearly non-ambulant child who is 16 Years old.I have been trying to find information about the optimum amount of calories to feed my son who is suffering…Continue

Electronic wheelchair

Started Feb 11 0 Replies

Hi,I am the parent of a 16 year old suffering from DMD.I need to buy an electronic wheelchair for better mobility for my son.Can anyone suggest any good electronic wheelchair manufacturers in India…Continue

 

Sampreet's Page

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Sampreet posted a discussion

Calorie needs

How can we estimate the calorie needs of a nearly non-ambulant child who is 16 Years old.I have been trying to find information about the optimum amount of calories to feed my son who is suffering from DMD,but there isn't much information.Are there no trials conducted to estimate the nutritional needs of our children.My son takes prednisone,so it is hard to maintain his weight and he is very short for his age only 140 cms.I think this short height is due to his osteoporosis.Can other parents…See More
Apr 26
Sampreet replied to Galia Ben Ishay's discussion Tamoxifen
"No but smtc1100 is enough to prolong the time we need to find the best therapy to cure it.I think gene therapy is the most effective way to cure this disease, but the big size of the dystrophin makes it nearly impossible to deliver the required…"
Feb 18
Sai Chand. Gurujala left a comment for Sampreet
"Hi Sampreet, I am from Hyderabad, How is your son doing. Please share. Thank you."
Feb 16
Sampreet replied to Galia Ben Ishay's discussion Tamoxifen
"Hi,I am the parent of a 16 year old with duchenne muscular dystrophy . I suggest you contact DART dystrophy annihilation research trust in bangalore if you are in India . If you need to know ,price of eteplirsen in Indian rupees is nearly 2 crore…"
Feb 15
Sampreet posted a discussion

Electronic wheelchair

Hi,I am the parent of a 16 year old suffering from DMD.I need to buy an electronic wheelchair for better mobility for my son.Can anyone suggest any good electronic wheelchair manufacturers in India at low cost.Thanks in advanceSee More
Feb 11
Sampreet replied to Jonathan's discussion Weight loss
"Sir, I suggest you try and contact Stanley Nelson, who is one of the leading experts in Duchenne. I think he is available in Facebook"
Feb 8
Sampreet is now a member of PPMD Community
Feb 3

Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
1
Age(s) of child(ren)/individual(s) with Duchenne:
13-18
City:
Hyderabad
State:
Andhra Pradesh

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At 6:02am on February 16, 2017, Sai Chand. Gurujala said…

Hi Sampreet,

I am from Hyderabad,

How is your son doing.

Please share. Thank you.

 
 
 

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