"Hey guys. My son Justin is 15yrs old. He turned 15 this past April. I would love to join in on any discussions.
We havent really told Justin anything. We discuss it as it comes up. I just dont want to dampen his outlook on what he wants to do…"
"Here is a pic of . We are doing some modifications to it ourself. My husband is a handy man! He is building a frame to go on the front that will be removable. Justin likes to hunt. Hogs are prevalent in our area and they need to be weeded out.…"
"We just bought our son an ActionTrack chair. Actually, Justin has no idea. He is at camp and will be surprised with it when he gets home. I will post pics of it later, I dont have them uploaded yet. He tried one out a couple of weeks ago and loved…"
"When Justin went to camp the first time, he was 6yrs old. I cried every single day he was gone and was a paranoid wreck. Then we picked him up. he was beaming with a huge smile on his face. he started crying. Not because he missed me, but because he…"
"Justin has a g-tube with a mickey button. We use it often to vent his belly and release built up gas pressure. We have to open up his button, attach a syringe and pull the air out. Justin has had a button since he was 7yrs old. Doctors have…"
Hey guys. My daughter Halee needs some help. SHe is doing a research paper over the emotional impact of dmd on the boys and their families. Halee is very interested in this topic since she knows how hard it is for her and her sister to deal with Jusitins having DMD. She has a list of questions for parents, siblings, and the boys. If the boys are too young and you dont want to ask them, feel free to skip those questions or answer based on their behavior and what they talk about. If you can help…See More
I am Samantha. A 30something stay at home mom with three kids. I have been married to my high school sweetheart for 17yrs now. We live in a small east Texas town. We have alot of dogs, cats and horses. I love to read, play on the computer, fish, and hang out with my kids.
About my family:
My husband Ken is a Dallas Fireman. He loves to fish and camp. Halee is 16yrs old. She loves to sing. She is in three choirs at school and on a dance team. She is graduationg early from high school and hopes to be a nurse one day. Justin is 12. He loves to camp, fish, play video games and draw. he hopes to be a fireman or video game designer one day. Kennedy is 7. She loves to run and play, draw, fish, camp and collect things. She wants to be a princess and move to new york one day. Justin was diagnosed with DMD when he was 5. It changed our lives, but also made us stronger people. Its a part of our lives, but not the biggest part of our lives.
Name(s) of child(ren)/individual(s) with Duchenne:
My name is Marharita. I am from Ukraine. I have a son with muscular dystrophyDuchenne. He is 9,5 now. I want to invite you with your family in our country. I am 42. I work an economist. My husband works too. He is 47. Yet I have a daughter. She is 18. I would like how you live and will lesten how you live in your country with your problem. My email: email@example.com. I will ready you connect on scype: Alina. phone: +380504870457
just a quick note, you had recommended canine assistants a while back, we just had our home visit, and hope it went well, the vister asked if we knew you, she said she did your visit too (lindsay, i think,her dog is carly) anyway, thanks for the recommendation!
Just thought I would let you know I haven't forgotten about you - I am pulling up all the old and new papers and there are a lot of conflicting opinions, so just ploughing through and summarising the physiology. (I certainly don't want to give you and any bad information). Is Justin on CoQ10 by any chance?
Hi Samantha. I was curious on Medicaid and private insurance. Does Medicaid kick in before or after private insurance? Also, does medicaid restrict which doctors you go to see? We currently take Justin to Cincy and don't want to change this at this time but want to make sure medicaid doesn't interfere. We live in South Texas.
I love your page. Your son is adorable. If you are ever in the Salt Lake area it would be fun to get together. His little feet look like my sons, with all the battle wounds. My son just had the heel cord and tendon transfer surgery because his "drop foot" was so bad. He is doing much better now. I'm new to PPMD so it's been really nice to see other families on here going through the same struggles.
Our Canine Assistants graduating class (3 DMD boys) started a yahoo group and we would love to have people join the group who have had more experience than us. If you are interested in joining, please check it out here: http://groups.yahoo.com/group/canineassistantfriends/
Also, let the coordinator know that I suggested you join and about Jasmine!