my son diagnosed with DMD in jan 2016 and still since then i am in a nightmare, i am trying to be strong for my kids and hoping that God give me the strength. when i read your stories it is like reading mine, i believe we are all passing in…"
i wa reading a number of your posts it seems you are updated with most information about this DMD, a knew about this about my son 6 months ago and i could do nothing just crying and trying to forget to be able to live normally with him,…"
i am so sorry to know about your son, and know that there is another family suffering like us after diagnosing thier son with this horrible disease,
till now I and my husband can not accept the idea of that our sun has this disease it si…"
"pls let me know if we can do something to accelerate FDA's action and respond, it is nonsense that FDA slow down or ignore decisions that make life saving difference!
i am from Iraq and nothing available here neither community for DMD nor…"
"Dear all reading your posts give me hope that things might not be that worse as i unfortunately expect , my son is just 2 years old and i was afraid that he will not be able to walk in near future (hope not).
it is first time i hear…"
i read this post and i have same case as you, my son has exon 44 deleted:(
although the post is old but i wanted to share with you that i found premuch same info that there is trials on deleting skipping exon 45 in order to stop the…"