PPMD Community

Sam
  • Male
  • Iraq
  • Iraq
Share on Facebook
Share

Sam's Friends

  • Alpa Khushalani
  • Ann Martin
 

Sam's Page

Latest Activity

Sam replied to Rachel Sedacca-Replogle's discussion Results from physical therapy?
"Dear Rachel i need to know what PT is useful as well as i need to do it for my 2.5 son. hopefully someone help us in this regard. thanks Sam"
Oct 27, 2016
Sam replied to Lisa Tepper's discussion Deflazacort dosing schedule
"Dears my son diagnosed with DMD in jan 2016 and still since then i am in a nightmare, i am trying to be strong for my kids and hoping that God give me the strength. when i read your stories it is like reading mine, i believe we are all passing in…"
Oct 27, 2016
Sam replied to Nida Zuberi's discussion What supplements/ vitamins combination works
"Dear Alpa thanks for your help."
Jul 31, 2016
Sam replied to Nida Zuberi's discussion What supplements/ vitamins combination works
"Dear Alpa i wa reading a number of your posts it seems you are updated with most information about this DMD, a knew about this about my son 6 months ago and i could do nothing just crying and trying to forget to be able to live normally with him,…"
Jul 28, 2016
Sam replied to Chris's discussion Please Help - 5 yo Son Diagnosed - We are just overwhelped and broken hearted
"Hi Chris i am so sorry to know about your son, and know that there is another family suffering like us after diagnosing thier son with this horrible disease, till now I and my husband can not accept the idea of that our sun has this disease it si…"
Jul 28, 2016
Sam replied to Chris's discussion Any new drugs expected next 3-5 years?
"Hi according to my searchs, could not find anything. you can check the clinical trial website for updates https://clinicaltrials.gov/ct2/results?term=DMD&pg=3 good luck "
Jul 28, 2016
Sam replied to Bernardo A. Iriberri's discussion The FDA and Ataluren (Translarna)
"pls let me know if we can do something to accelerate FDA's action and respond, it is nonsense that FDA slow down or ignore decisions that make life saving difference! i am from Iraq and nothing available here neither community for DMD nor…"
Jul 28, 2016
Sam replied to Dakota Ferrazzi's discussion anyone 20 years or older with DMD still walking?
"Dear all reading your posts give me hope that things might not be that worse as i  unfortunately expect , my son is just 2 years old and i was afraid that he will not be able to walk in near future  (hope not). it is first time i hear…"
Jul 28, 2016
Sam joined PPMD's group
Jul 27, 2016
Sam replied to Geraldine Coolidge's discussion Exon 44 Deletion
"Dears i read this post and i have same case as you, my son has exon 44 deleted:(  although the post is old but i wanted to share with you that i found premuch same info that there is trials on deleting skipping exon 45 in order to stop the…"
Jul 27, 2016
Sam joined PPMD's group
Jul 25, 2016
Sam is now a member of PPMD Community
Jul 6, 2016

Profile Information

About me:
I have a son 2 years diagnosed with DMD just a few months ago
About my family:
No one in our family has this decease
City:
Iraq

Comment Wall

You need to be a member of PPMD Community to add comments!

Join PPMD Community

  • No comments yet!
 
 
 

© 2017   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service