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Satish
  • Male
  • Boise, ID
  • United States
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  • Anu Bakshi
  • Praveena
  • Rahul Deshpande
  • Prakash
  • Swati A
  • vishal wadhwani
  • Jamie Larsen
  • Sharon Hesterlee
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Satish's Page

Latest Activity

Anu Bakshi left a comment for Satish
"hello, Satish.. Thanks for the encouragement... we stay in Hyderabad , India... M cell no is +91 9700010470."
Aug 5, 2014
Sharon Hesterlee left a comment for Satish
"Hi Satish:  Your son is a little bit young for most of the current trials--they usually start recruiting at age 5 or 6.  But there are several trials that will be starting soon for which he could be a good candidate.  Both Reveragen…"
Jul 24, 2014
Satish joined Bains's group
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India

For folks to share information about any research happening in India for Duchenne.
Jul 18, 2014
Rahul Deshpande left a comment for Satish
"Hi Satish,    My son was detected with DMD about a month back. I am trying Ayurvedic and Homeopathic medicines. Really struggling to find a treatment. Have you heard anything more on the treatment side.  "
Jul 18, 2014
Satish joined Manish Sawhney's group
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DUPLICATION in DMD

To bring closer the families with DUPLICATION which is Rare-most of all DMD mutations.
Jul 18, 2014
Satish commented on PPMD's group Duplications
"Our son 4 years old has duplication of 51-55. He is walking right now for small distance."
Jul 18, 2014
Satish joined PPMD's group
Jul 18, 2014
Satish is now a member of PPMD Community
Jul 17, 2014

Profile Information

About me:
DMD.
About my family:
4 years.
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Boise
State:
ID

Comment Wall (4 comments)

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At 4:46am on August 5, 2014, Anu Bakshi said…

hello, Satish.. Thanks for the encouragement... we stay in Hyderabad , India... M cell no is +91 9700010470.

At 9:19pm on July 24, 2014, Sharon Hesterlee said…

Hi Satish: 

Your son is a little bit young for most of the current trials--they usually start recruiting at age 5 or 6.  But there are several trials that will be starting soon for which he could be a good candidate.  Both Reveragen and Catabasis are planning to test their drugs designed to act like steroids but with less side effects in 2015.  Also, Pfizer and Bristol Myers Squibb both have drugs that help build muscle mass that should go into testing for Duchenne by the end of this year or the beginning of next year.  All four of these potential trials will not be "mutation-specific."  So, they are not recruiting yet, but could be good prospects soon.  The only other study that I might recommend that is already underway now is the halofuginone study (by Akashi Therapeutics), but boys must be 6 years old to participate.  So, I think the timing might be good--by the time these first four studies I mentioned are underway your son will likely be old enough to meet entry criteria.  I know that Catabasis study, in particular, will be recruiting younger boys.  I hope this helps!  Sharon

At 3:25am on July 18, 2014, Rahul Deshpande said…

Hi Satish,

   My son was detected with DMD about a month back. I am trying Ayurvedic and Homeopathic medicines. Really struggling to find a treatment. Have you heard anything more on the treatment side.

 

At 3:24am on July 18, 2014, Rahul Deshpande said…

Hi Satish,

 

 
 
 

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