SAMBA
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  • VISAKHAPATNAM,ANDHRA PRADESH
  • India
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SAMBA's Friends

  • RAKTIM SINGH
  • pooja gupta
  • Mohan
 

SAMBA's Page

Profile Information

About me:
MARRIED WITH TWO CHILDREN
About my family:
Wife-Suma
Son-Pridhvi
Daughter-Sisi
Name(s) of child(ren)/individual(s) with Duchenne:
Pridhvi
Age(s) of child(ren)/individual(s) with Duchenne:
13-18
City:
VISAKHAPATNAM,ANDHRA PRADESH

Comment Wall (4 comments)

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At 6:28am on May 13, 2010, RAKTIM SINGH said…
My kid 5.9 year old has been diagnosed with DMD.(exon 46 to 50 deletion). I am in bangalore.
My mail is raktims@infosys.com. Pls keep in touch.
At 11:58pm on January 2, 2009, Deb Robins said…
Hi, more information about the upcoming Bangalore conference Pooja refers to here, can be found at:
http://tinyurl.com/bangaloreFeb09
best regards
Deb
At 9:37am on November 30, 2008, pooja gupta said…
Dear friends,
This refers to all concerned parents/patients suffering from Duchenne/Becker Muscular Dystrophy.

It is known that currently there is no cure for this disease. However, a lot of research has been happening in recent years in developed countries, and it is expected to be curable in a few more years from now.

For the first time in Asia (India) , we have been able to set up an association of parents and actual sufferes from this disease. We are now in the process of touching base with all concerned, and organizing the first conference for the same in FEB 2009. It is being orgainzed in association with UPPMD, and eminent doctors from around the world would be attending the same, and addressing the issues and the therapies for the same.

We are in the process of touching base with concerned patients/parents, as the case maybe, and informing you about the same. We also seek active participation from you, so as to enable these therapies to be known and understood, so we could fight together to the same.

You are requested to kindly write to us at the following email id, and we shall contact you within 24 hours of the same.

We also request doctors to write back to us, if they could help us in our efforts.


Warm Regards
Pooja
gupta.pooja44@gmail.com
At 10:47am on June 24, 2008, Mohan said…
Hello Samba,

I have a son also , who has DMD. he is 10yrs, now
How is your son doing ?

I am from Vizag also, live in the States now
Mohan
 
 
 

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