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SAHHID ZUBAIR
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  • Lahore Punjab
  • Pakistan
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Three kids of same family with muscular dystrophy need help

Started this discussion. Last reply by SAHHID ZUBAIR Aug 22, 2015. 2 Replies

 A Mother's PleaMy name is Saher Zubair. My husband Shahid and I live in Pakistan and are parents to three beautiful and amazing children––…Continue

 

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SAHHID ZUBAIR replied to SAHHID ZUBAIR's discussion Three kids of same family with muscular dystrophy need help
"Najia, thanks for wishes, but in worst phase, I lost my job, three of them need lot of care, I appeal to govt for support but zero reply, You are lucky you are in USA, My ids wish to move out of this country, socialy we are zero, finaciay zero,…"
Aug 22, 2015
jiasusa5 replied to SAHHID ZUBAIR's discussion Three kids of same family with muscular dystrophy need help
"This is Najia Sheikh.How you and family doing?please let me know about your kids.May Allah give them health ameen"
Aug 22, 2015
SAHHID ZUBAIR replied to Alissa's discussion Back issues
"We pray for your son and wish that you pray for us"
Jan 22, 2013
SAHHID ZUBAIR joined Kari's group
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Dad's Only

Become leaders in our community, Build a stronger bond between fathers and their children, Enjoy the rewards, that being a father involved in your child's life, gives.
Jan 22, 2013
SAHHID ZUBAIR favorited Ryan Fischer's blog post Help us Reauthorize the MD-CARE Act
Jan 22, 2013
SAHHID ZUBAIR shared Ryan Fischer's blog post on Google +1
Jan 22, 2013
SAHHID ZUBAIR commented on Ryan Fischer's blog post Help us Reauthorize the MD-CARE Act
"MAY GOD BLESS YOU as you people are a hope for hopeless kids and families. Your soft heartiness and helping attitude give life to those fighting for life."
Jan 22, 2013
SAHHID ZUBAIR replied to Moein's discussion Long-term benefits and adverse effects of intermittent versus daily glucocorticoids in boys with Duchenne muscular dystrophy.
"Please look at our link www.miracleforthree.com for three kids with MD"
Jan 22, 2013
SAHHID ZUBAIR favorited danielle's discussion mda walk
Jan 22, 2013
SAHHID ZUBAIR posted a discussion

Three kids of same family with muscular dystrophy need help

 A Mother's PleaMy name is Saher Zubair. My husband Shahid and I live in Pakistan and are parents to three beautiful and amazing children––Nida, 14; Ahmad, 12; and our youngest Eman, 7. Once we too were a happy, content family like most are. Yes, we were not rich but we had good health and love and that was enough, until …See More
Aug 25, 2012
SAHHID ZUBAIR commented on SAHHID ZUBAIR's album
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Three kids of same family with muscular dystrophy need help

"1 new Announcement:What would you do if someone told you that all three of your children have a rare and sometimes fatal genetic disorder and that they will be confined to wheelchairs for the rest of their lives? We are the Zubairs and we refuse to…"
Aug 25, 2012
SAHHID ZUBAIR posted photos
Aug 25, 2012
SAHHID ZUBAIR is now a member of PPMD Community
Jun 13, 2012

Profile Information

About me:
We are Shahid and Saher Tabassam Zubair, residents of Lahore, Pakistan and parents to three amazing children––Nida, 14; Ahmad, 12; and our youngest Eman, 7. Once we too were a happy, content family like most are. Yes, we were not rich but we had good health and love and that was enough, until Muscular Dystrophy (MD) afflicted our three children and took our joy away from us.

MD is a rare genetic disorder that is severely disabling, and sometimes life threatening. Our children were perfectly healthy and bright until they got this disease which causes severe muscular wasting. It has left the two older children––Nida and Ahmad paralyzed from waist down with the youngest headed in the same direction. The smallest of task, even moving, has become a challenge for these once active and energetic kids.

Searching for Help
In Pakistan, we have been unable to find proper diagnosis, cure, or treatment for our children. For instance, the diagnostic facility in Pakistan only offers CPK blood test, while CPK MB AND CPK BB are more accurate to classify the nature of NMD. Unfortunately, no lab in Pakistan has this facility. We know that at present time, proper management is the best treatment that is offered for NMD that has no known cure. Unfortunately, we don’t even have access to that. Bomb blasts, Violations, sue side bombers, Attacks on students like MALALA,
kidnapping, people killing due to sect ism, poisoned medicines, and so many troubles are here.

How You Can Help
We are a one-income family living in a rental apartment. As such our means are very limited. Our requests to various authorities in Pakistan for financial assistance to take the children abroad for proper diagnosis have not been answered.

We wish to get help to move USA, Immigrate there till our kids life.

Unfortunately the challenge is not only for precised diagnosis, but also for maintenance of three kids with MD. We are in a developing country where there is very less awareness about this problem. We are not receiving any support from any Government or private institution.
You could understand by medical facility from Government and social awareness and community support is how much necessary for such kids and family. Unfortunately i am alone fighting for my family and is in help less position. My kids wish that if they could move to any developed country to at least spend there days of life in PEACE, Could you help us ????
Kindly help me to raise funds by community to arrange to move my kids for better survival time

With best Regards.


Shahid Zubair

UBL Bank Johar Town Branch
Branch Code: 1937
Lahore, Pakistan
Account Title: Shahid Zubair
Account # 1937-0100779

Mr and Mrs Shahid Zubair
00923008424479
576 L Block Johar Town Lahore Pakistan
About my family:
My wife Saher is one of the wonderful women, taking care of our three kids suffering with muscular dystrophy (most probably Limb Girdle type). We wish that we could do some thing for our kids.
(Ajwa dates from Saudi Arabia has played a miraculous effect on overcoming few problems of kids related to muscular dystrophy regularly used for kids ' findings of my wife")
Name(s) of child(ren)/individual(s) with Duchenne:
Nida Shahid, Ahmad Zubair, Eman Shahid
Age(s) of child(ren)/individual(s) with Duchenne:
7-12, 13-18
City:
Lahore, Punjab

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