We are Shahid and Saher Tabassam Zubair, residents of Lahore, Pakistan and parents to three amazing children––Nida, 14; Ahmad, 12; and our youngest Eman, 7. Once we too were a happy, content family like most are. Yes, we were not rich but we had good health and love and that was enough, until Muscular Dystrophy (MD) afflicted our three children and took our joy away from us.
MD is a rare genetic disorder that is severely disabling, and sometimes life threatening. Our children were perfectly healthy and bright until they got this disease which causes severe muscular wasting. It has left the two older children––Nida and Ahmad paralyzed from waist down with the youngest headed in the same direction. The smallest of task, even moving, has become a challenge for these once active and energetic kids.
Searching for Help
In Pakistan, we have been unable to find proper diagnosis, cure, or treatment for our children. For instance, the diagnostic facility in Pakistan only offers CPK blood test, while CPK MB AND CPK BB are more accurate to classify the nature of NMD. Unfortunately, no lab in Pakistan has this facility. We know that at present time, proper management is the best treatment that is offered for NMD that has no known cure. Unfortunately, we don’t even have access to that. Bomb blasts, Violations, sue side bombers, Attacks on students like MALALA,
kidnapping, people killing due to sect ism, poisoned medicines, and so many troubles are here.
How You Can Help
We are a one-income family living in a rental apartment. As such our means are very limited. Our requests to various authorities in Pakistan for financial assistance to take the children abroad for proper diagnosis have not been answered.
We wish to get help to move USA, Immigrate there till our kids life.
Unfortunately the challenge is not only for precised diagnosis, but also for maintenance of three kids with MD. We are in a developing country where there is very less awareness about this problem. We are not receiving any support from any Government or private institution.
You could understand by medical facility from Government and social awareness and community support is how much necessary for such kids and family. Unfortunately i am alone fighting for my family and is in help less position. My kids wish that if they could move to any developed country to at least spend there days of life in PEACE, Could you help us ????
Kindly help me to raise funds by community to arrange to move my kids for better survival time
With best Regards.
UBL Bank Johar Town Branch
Branch Code: 1937
Account Title: Shahid Zubair
Account # 1937-0100779
Mr and Mrs Shahid Zubair
576 L Block Johar Town Lahore Pakistan
About my family:
My wife Saher is one of the wonderful women, taking care of our three kids suffering with muscular dystrophy (most probably Limb Girdle type). We wish that we could do some thing for our kids.
(Ajwa dates from Saudi Arabia has played a miraculous effect on overcoming few problems of kids related to muscular dystrophy regularly used for kids ' findings of my wife")
Name(s) of child(ren)/individual(s) with Duchenne: