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Ryan Fischer
- Male
- New York
- United States
- Featured Blog (88)
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Ryan Fischer's Groups
Ryan Fischer's Discussions
Suspension liquid version of deflazacort instead of pill form
Started this discussion. Last reply by David Nov 3, 2014. 1 Reply 0 Favorites
Study by CHOP on Clinical Trials - We need YOU to participate
Started this discussion. Last reply by Colin McKenzie Oct 26, 2008. 3 Replies 0 Favorites
Congress Passes MD-CARE Act Reauthorization
Started this discussion. Last reply by Jerry Dallapè Oct 1, 2008. 4 Replies 0 Favorites
Ryan Fischer,Sr. Vice President, Community Engagement
Profile Information
- About me:
- Vice President of Advocacy & Community Outreach for PPMD. Please feel free to contact me via ryan@parentprojectmd.org. I am happy to answer any questions you have about our organization and connect you with others in the community. Please feel free to contact me for access to any of our materials as well. We have a great list of resources for you, your doctors, and your son's school. Thank you for visiting the PPMD community site.
- City:
- New York
Ryan Fischer's Photos
Ryan Fischer's Blog
PPMD Launches New Resource Center for Families
Posted on June 21, 2017 at 10:00am 0 Comments 0 Favorites
Navigating life with Duchenne can be daunting and time consuming for families. We rely on each other to share wisdom and information in order to make the process smoother and life a bit easier. The best guidance we can get is from those who have been through a given situation, sharing what they’ve learned to help others navigate resources that exist.
PPMD strives to find…
Continue65 Members of Congress Send Letter of Strong Support for Duchenne Priorities for Next Year’s Budget
Posted on June 15, 2017 at 11:30am 0 Comments 0 Favorites
With Congress not wrapping up spending bills for Fiscal Year 2017 until we were more than 7 months into the fiscal year, the FY 2018 budget and appropriations (funding) cycle will be interesting to say the least. The Trump Administration released a preliminary — or “skinny” budget -- in March but…
ContinueURGENT Action Alert – Call Congress Now Before This Afternoon’s AHCA Vote!
Posted on May 4, 2017 at 12:00pm 0 Comments 0 Favorites
The newest version of the GOP HealthCare Bill is coming to a vote by 1:30 PM EDT this afternoon!
This is moving fast and we need ALL MEMBERS of our community to …
ContinuePPMD’s #EverySingleOne Tour: Durham
Posted on December 7, 2016 at 11:04am 0 Comments 0 Favorites
Duke University marked our final stop on PPMD’s 2016 Every Single One Tour, held on November 2. We were thrilled to be holding another tour stop at one of…
ContinueLight up the Lines!! Urge Your Senators to Vote YES on 21st Century Cures!
Posted on December 5, 2016 at 10:07am 0 Comments 0 Favorites
We need you to call your two US Senators TODAY with one simple message – VOTE YES ON 21st CENTURY CURES!!
With just days remaining in the current Congress, this bill represents the extraordinary efforts of our PPMD community’s work and outreach with…
Continue
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Events
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2017 Disneyland Half Marathon, 10K & 5K
September 1, 2017 to September 3, 2017 – Disneyland
0 Comments 0 Favorites -
FACES NY - World Duchenne Awareness Night
September 7, 2017 from 6pm to 9pm – Buffalo Yacht Club
0 Comments 0 Favorites -
PPMD's Every Single [One] Tour: Charleston, WV
September 9, 2017 all day – Charleston, WV
0 Comments 0 Favorites -
PPMD DREAM Dinner & Auction
September 23, 2017 from 5:30pm to 9pm – Greater Tacoma Convention Center
0 Comments 0 Favorites
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Comment Wall (37 comments)
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Hi Ryan
Thanks for your help for passing on my queries to right person
Regards
Kuldeep
Hi Ryan, I met you briefly at the connect conference this weekend and Patrick Rownd said to get in touch with you and you could walk us through the advocacy piece and how to get started. We are in St. Louis, MO. 63109 and I know senator Blunt has already signed on, but Claire Mccaskill has not. Not sure where we are in Missouri as far the house. Any help would be very appreciated as we are just getting started.
hey Ryan !! I am Nabeel Ahmed patient of MD want to know about physical exercise.
hey ryan how are you its kimmy just letting you know all ready email senator cantwell from washingtion state , will be calling congressmen heck klimer and smith. about med care out is there any one from tacoma comming or gig harbor kimmy
Hey Ryan, Do you guys happen to have any guide lines or a packet for Physical Therapy? I have been running into a lot of issues with them doing activities that are not helpful to Danny, but "they are the professonal" so I thought if I had something I could just give them that would help! Let me know, also please let me know if and what you need me to do for district 5 (53214) WI.
Thanks, Melissa Meller (Danny Ell's Mama) :)
no i havent gotten a packet just found out about u guys we just found out in May that our son has DMD he is 3
My son Austin(DMD) goes to a private school. Every year we have a 5K Run to raise money for the school and a portion of the money they send to Parent Project. Could you send me some information that maybe can be passed out at the race about what duchenne is and what Parent Project is all about?
Kim
It was great meeting you at the Run for Our Sons Dinner at Naples/Disneyland. Thank you for welcoming us.
Please could you send me the Manifesting Carrier DVD and materials that you have available. I will gladly give you my new address once you add me as a friend to keep it personal if that is okay. We have moved since I last received materials which was probably 2008 sometime. Also, let me know how PPMD can have more presence on the West Coast.
Thank you.
Kari
Looking forward to catching up with you at the conference this week. I started a discussion last week to see if anyone who is attending might see it and contact me or Diana about the study. It didn't attract any attention, but I don't know if there's a more direct way to invite conference participants. I believe you all may be including info about the study in the welcome packets for participants, and Diana should have sent you a podium announcement (or will give it to you in ATL). If you have any other suggestions, please let me know. Thanks a lot.
Bill
Hope you are well. I have a question about COQ10. Its a suppliment. Are you aware of this suppliment and do you know of any potential benifits to our boys? I have just become aware of COQ10 and would like to find out more. Maybe if you know of another family using this product you could pass along the info to them.
Hope to see you at the conferance in 2010.
Steve Beaulieu
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