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Ryan Fischer
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- New York
- United States
- Featured Blog (2)
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Ryan Fischer's Groups
Ryan Fischer's Discussions
Study by CHOP on Clinical Trials - We need YOU to participate
Started this discussion. Last reply by Colin McKenzie Oct 26, 2008. 3 Replies 0 Favorites
Congress Passes MD-CARE Act Reauthorization
Started this discussion. Last reply by Jerry Dallapè Oct 1, 2008. 4 Replies 0 Favorites
Reauthorization Bill reaches House Floor for a Vote Tomorrow!
Started this discussion. Last reply by Tina Sep 26, 2008. 20 Replies 0 Favorites
Ryan Fischer, Outreach & Advocacy Director
Profile Information
- About me:
- I am the Outreach Director for PPMD and happy to answer any questions you have about our organization. Please feel free to contact me for access to any of our materials as well. We have a great list of resources for you, your doctors, and your son's school. Thank you for visiting the PPMD community site.
- City and State:
- New York
- Country:
- NY
Ryan Fischer's Photos
Ryan Fischer's Blog
Advocacy: Get Active!
Posted on January 5, 2012 at 2:00pm 0 Comments 0 Favorites
With deficit reduction remaining a top priority in Congress and a $1.2 trillion spending reduction on the horizon, 2012 will be a critical year to protect Duchenne research and public health priorities. For this to happen, we need your voice on Capitol Hill now more than ever before. Whether that be by joining us in Washington at the Annual Advocacy Conference or advocating from home by contacting…
Continue So Much Happening this Weekend....
Posted on October 21, 2011 at 1:30pm 0 Comments 1 Favorite
Greetings Friends!
We have a very busy weekend ahead of us, with some fantastic events happening in the community!
I wanted to take a moment to highlight these fun and very different fundraisers taking place over the weekend.
Big shout out to all those who are organizing events (not just these events- all…
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no i havent gotten a packet just found out about u guys we just found out in May that our son has DMD he is 3
My son Austin(DMD) goes to a private school. Every year we have a 5K Run to raise money for the school and a portion of the money they send to Parent Project. Could you send me some information that maybe can be passed out at the race about what duchenne is and what Parent Project is all about?
Kim
It was great meeting you at the Run for Our Sons Dinner at Naples/Disneyland. Thank you for welcoming us.
Please could you send me the Manifesting Carrier DVD and materials that you have available. I will gladly give you my new address once you add me as a friend to keep it personal if that is okay. We have moved since I last received materials which was probably 2008 sometime. Also, let me know how PPMD can have more presence on the West Coast.
Thank you.
Kari
Looking forward to catching up with you at the conference this week. I started a discussion last week to see if anyone who is attending might see it and contact me or Diana about the study. It didn't attract any attention, but I don't know if there's a more direct way to invite conference participants. I believe you all may be including info about the study in the welcome packets for participants, and Diana should have sent you a podium announcement (or will give it to you in ATL). If you have any other suggestions, please let me know. Thanks a lot.
Bill
Hope you are well. I have a question about COQ10. Its a suppliment. Are you aware of this suppliment and do you know of any potential benifits to our boys? I have just become aware of COQ10 and would like to find out more. Maybe if you know of another family using this product you could pass along the info to them.
Hope to see you at the conferance in 2010.
Steve Beaulieu
Hope ? to talk to you soon
Hey just checking to see if you were able to send Josh stuff for his presentation at school. Have not recieved anything yet, just checking in on it. Sooo nice to hear your voice when we talked. So much to fill you in on too.
Talk to you soon
Tammy
My name is Gisel and am trying to get as much information out as I can about DMD. Not enough people know about it. I admit that I was one of those people until I became affected by it, and it shouldn't be that way. I have contacted a local radio station Dj in Miami and he said he could help with the cause. I was told by another member that I could ask you for information and a DVD.
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