PPMD Community

Robin Taylor
  • Female
  • Omaha, NE
  • United States
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Robin Taylor's Friends

  • Shirley Cannon
  • Jackie Micek
  • Kara Schmidt
  • Annie Daley
  • Ann
  • Dawn Dettmer
  • Jolene Wees
  • Dani Micek
  • Sandy
  • Shari & John Grant
  • Annie Kennedy
  • Kathi Kinnett
  • Betty Vertin

Robin Taylor's Groups

 

Robin Taylor's Page

Latest Activity

Robin Taylor replied to ven's discussion Brenda Wong Leaving CMC
"Shawn - thanks for the update on Dr. Wong. Worcester, Massachusetts is gaining a great doctor --- wish she was coming to Nebraska."
Mar 30
Robin Taylor commented on Pat Furlong's blog post First Duchenne Patient Dosed in Microdystrophin Gene Therapy!
"Do we have an update on the young boy who received the first DMD gene therapy?  Keeping him, his caregivers and family in our prayers."
Feb 15
Robin Taylor replied to ven's discussion Brenda Wong Leaving CMC
"Do you know where Dr Wong is going?"
Feb 15

Profile Information

About me:
I live in Omaha, NE with my husband, Mark. We've been married for 36 years. I work at the University of Nebraska Medical Center as a Project Coordinator and Managing Editor for the Journal of Neuroimmune Pharmacology.
About my family:
Mark and I have two children. Nicole and Rob have three children, Louie, Bella and Clara. Louie was diagnosed September 2010 with DMD. They moved from Michigan back to Nebraska in 2015.

Our son Scott is an electrical apprentice and married Courtney in October 2010. Their daughter Maddie graduated from high school and is continuing her education.
Name(s) of child(ren)/individual(s) with Duchenne:
Louie
Age(s) of child(ren)/individual(s) with Duchenne:
0-3, 7-12
City:
Omaha
State:
NE

Comment Wall (3 comments)

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At 4:19pm on September 30, 2014, Dawn Dettmer said…

Thanks for inviting me to this page.

We had a good summer. Jeremy graduated from UNL and Brett from high school...on the same day. Now Brett is at UNL and Jeremy will be leaving in a couple weeks for the US Army. As you know, life is busy with DMD. Hope all is well with you.

At 10:17pm on October 5, 2011, Betty Vertin said…
Sorry to take so long to reply.  I think you have been in touch with my father-in-law already.  We will be there with all the kids and hope to see you there.
At 3:25am on September 15, 2011, sharon Wilmot said…
Hi Robin, your little grandson is so cute.  So sorry you have had to join this community.   Louie is a fab name.  x
 
 
 

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