I love my family!!! I am an avid runner. I still play volleyball and I love to golf. I am a teacher, currently subbing and working as a teacher assistant in a k-8 art program at my daughter"s school. I love my boxer puppy and I love to run with her.
About my family:
I have a husband and 3 children. I have twin 18 year old son's and a 9 year old daughter. One of my son's has Duchenne's. We like to travel (road trip style) I hate to fly!!!
Name(s) of child(ren)/individual(s) with Duchenne:
Hi Robin, I'm Velia joshua's mom, my son was diagnosed last September with this terrible disease, joshua has 9años old still walks with difficulty, but we hope that God will help us and give us strength to walk this path together, is the light of my life, Nadaman hear his voice in the morning and I forget everything, and so another day passes, I hope that Kevin is in good health, for the photographs shown happy and safe and has some great shows that parents with him.
May God bless you all and welcome to the forum, a big hug and kisses to Kevin
Hi Robin! I think you were one of the first "DMD mom's" I ever met after my son's diagnosis. It was at the Black and Blue Ball 2006. I think Kevin may have been an ambassader or held some role that year. Your entire family was there and you all were so wonderful and dare I say...normal... that it really helped my husband and I realize that we too would find that place you were at. We were only about 4 or 5 mos into the diagnosis with a then 4 year old and it was really wonderful to meet you all at that point in our lives. I hope you are all doing well. Will you be at Black and Blue this year? Xavier will be going to camp for the first time this year and we are trying to become more active in the local MDA, trying to be the change we want to see there. I'm happy to see you here and look forward to seeing you around town!