Rob and Theresa Capolongo
  • Male
  • Staten Island, NY
  • United States
Share on Facebook
Share on Facebook MySpace

Rob and Theresa Capolongo's Friends

  • Nancy DiDomenico
  • Andrea Cleary
  • amit gupta
  • Moein
  • Joanne Perrina
  • JoAnne Powell
  • Dana Edwards
  • Gloria Caballero Thompson
  • Joshua's mom
  • Rosalie
  • cheryl cliff
  • Liisa Underwood
  • Pat Furlong

Rob and Theresa Capolongo's Discussions


Started Aug 31, 2011 0 Replies

Is anyone using Indebenone.  My son is 5 and we were thinking of starting him on this. Any advice...


Started this discussion. Last reply by David Aug 31, 2011. 1 Reply

NY City family here with a 5 year old with Duchenne.  Is anyone using Indebenone.  I know it is in clinincal trial at Chop.  We were thinking of starting it.  Any advice will be appreciated.

My sons deletion

Started this discussion. Last reply by Ofelia Marin Apr 3, 2011. 18 Replies

My sons is 4 yrs 9 months. His deletion is big (3 to 43).  Before knowing the deletion I was encouraged about exon skipping.  I asked Dr Wilton from Australia if his deletion could be helped, he said…Continue

My son about to start steroid treatment

Started this discussion. Last reply by amit gupta Feb 25, 2011. 3 Replies

Our 4 year old son was diagnosed with Duchenne in November 2010 (Deletion 3 to 43).  Under the care of Dr. Wong we are waiting for the results of a muscle biopsy to see the correct dose of steroid…Continue


Rob and Theresa Capolongo's Page

Profile Information

About me:
Parents of a child with Duchenne
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:

Comment Wall (3 comments)

You need to be a member of PPMD Community to add comments!

Join PPMD Community

At 7:22am on August 31, 2011, Clare Harper said…
At 7:21am on August 31, 2011, Clare Harper said…

Hi there,

there is an on going discussion on idebeone at the minute,read through it,

At 8:05am on March 14, 2011, Nancy DiDomenico said…

 Hi Rob and Theresa,

I'm so sorry to hear about your son. It breaks my heart knowing another family is in affected by this. It would be a pleasure to talk with you. My email is

God bless you!



Need help using this community site? Visit Ning's Help Page.



© 2023   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service