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Rob and Theresa Capolongo
- Male
- Staten Island, NY
- United States
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Rob and Theresa Capolongo's Groups
Rob and Theresa Capolongo's Discussions
Indebenone
Started Aug 31, 2011 0 Replies 0 Favorites
Is anyone using Indebenone. My son is 5 and we were thinking of starting him on this. Any advice...
Indebenone
Started this discussion. Last reply by David Aug 31, 2011. 1 Reply 0 Favorites
NY City family here with a 5 year old with Duchenne. Is anyone using Indebenone. I know it is in clinincal trial at Chop. We were thinking of starting it. Any advice will be appreciated.
My sons deletion
Started this discussion. Last reply by Ofelia Marin Apr 3, 2011. 18 Replies 0 Favorites
My sons is 4 yrs 9 months. His deletion is big (3 to 43). Before knowing the deletion I was encouraged about exon skipping. I asked Dr Wilton from Australia if his deletion could be helped, he said…Continue
My son about to start steroid treatment
Started this discussion. Last reply by amit gupta Feb 25, 2011. 3 Replies 0 Favorites
Our 4 year old son was diagnosed with Duchenne in November 2010 (Deletion 3 to 43). Under the care of Dr. Wong we are waiting for the results of a muscle biopsy to see the correct dose of steroid…Continue
Rob and Theresa Capolongo's Page
Profile Information
- About me:
- Parents of a child with Duchenne
- Name(s) of child(ren)/individual(s) with Duchenne:
- Rob
- Age(s) of child(ren)/individual(s) with Duchenne:
- 4-6
- City:
- STATEN ISLAND, NY
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Comment Wall (3 comments)
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Hi there,
there is an on going discussion on idebeone at the minute,read through it,
Hi Rob and Theresa,
I'm so sorry to hear about your son. It breaks my heart knowing another family is in affected by this. It would be a pleasure to talk with you. My email is Ladynbear@aol.com.
God bless you!
Nancy