"Hello we found out my son has a mutation of Exon 16 also, but our doctor told us that it was not a stop codon and that the entire dystrophin message is out of frame after the insertion. Was hoping PTC 124 would help my son, but with his mutation…"
"Did you get Tricare to pay for Deflazacort? I'm currently Active Duty Air Force and the Tricare office told us since it is not FDA approved they wont pay for it. Looking into getting with a case manager through Tricare to see if they can…"