Richard M. Pyryt
  • Male
  • Hampton, VA
  • United States
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Richard M. Pyryt's Friends

  • Ruth Griffith
  • Shea Holbrook
  • Pat Furlong
  • Jayna

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Latest Activity

Richard M. Pyryt commented on Pat Furlong's blog post PPMD Provides Travel Grant for Clinical Trial
"praying this will help the boys and hopefully this will lead to other exon skipping therapies since my son has a mutation of exon 16."
Aug 17, 2011
Richard M. Pyryt replied to Trinh Nguyen's discussion Stop Codon Mutation
"Hello we found out my son has a mutation of Exon 16 also, but our doctor told us that it was not a stop codon and that the entire dystrophin message is out of frame after the insertion. Was hoping PTC 124 would help my son, but with his mutation…"
Aug 16, 2011
Ruth Griffith and Richard M. Pyryt are now friends
Jul 19, 2011
Richard M. Pyryt replied to cristina chandler's discussion Deflazacort in the group Military Families with DMD
"Did you get Tricare to pay for Deflazacort? I'm currently Active Duty Air Force and the Tricare office told us since it is not FDA approved they wont pay for it.  Looking into getting with a case manager through Tricare to see if they can…"
Jul 17, 2011
Richard M. Pyryt joined Linda's group
Jul 17, 2011
Richard M. Pyryt is now a member of PPMD Community
Jul 14, 2011

Profile Information

About me:
Seriving in the United States Air Force. Love woriking on cars and spending time with my family.
About my family:
Married and have two lovely boys.
Name(s) of child(ren)/individual(s) with Duchenne:
Aidan
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Langley AFB Virginia

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