Richard M. Pyryt's Page

Richard M. Pyryt posted a status

"Any one hear anything about ACE-031? I know they stopped the trials pending the results of the last trial."

Oct 18, 2011

1 Comment 0 Favorites

Richard M. Pyryt posted a status

"Son having claiming he is dizzy all the time. Can it be due to deflazacort? Any suggestions he is six years old"

Aug 18, 2011

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Richard M. Pyryt commented on Pat Furlong's blog post PPMD Provides Travel Grant for Clinical Trial

"praying this will help the boys and hopefully this will lead to other exon skipping therapies since my son has a mutation of exon 16."

Aug 17, 2011

Richard M. Pyryt replied to Trinh Nguyen's discussion Stop Codon Mutation

"Hello we found out my son has a mutation of Exon 16 also, but our doctor told us that it was not a stop codon and that the entire dystrophin message is out of frame after the insertion. Was hoping PTC 124 would help my son, but with his mutation…"

Aug 16, 2011

Richard M. Pyryt posted a status

"fourth day with deflazacort so far so good, praying it stays like that for my little one"

Jul 20, 2011

0 Comments 2 Favorites

Ruth Griffith and Richard M. Pyryt are now friends

Jul 19, 2011

Richard M. Pyryt posted a status

"Does anyone know any good doctors that deal with DMD down in Florida. Looking around Tallahasse or Pensacola area."

Jul 17, 2011

4 Comments 0 Favorites

Richard M. Pyryt replied to cristina chandler's discussion Deflazacort in the group Military Families with DMD

"Did you get Tricare to pay for Deflazacort? I'm currently Active Duty Air Force and the Tricare office told us since it is not FDA approved they wont pay for it. Looking into getting with a case manager through Tricare to see if they can…"

Jul 17, 2011

Richard M. Pyryt joined Linda's group