proud father of Spencer ,Delaney and our Angel Tyler ,retired police officer, now playing mr.mom 3 or more days a week,going upstate n.y.w/them as much as possible
About my family:
Trying to live, love and laugh as much as possible while entertaining life's gifts,obstacles and hopefully promising future.Nicole works 3or4 days a week,Spencer loves star wars&legos,Delaney/2-1/2yrs.loves everything we like :beach w/4wd,frogs.Dora,elmo etc..
Name(s) of child(ren)/individual(s) with Duchenne:
We were in Denver and it was awsome...lots of very informative info. We are running Seattle and have put a team of 39 runners together. The team is called "team Ross and Finn" on the run for our sons webpage, check it out! We have managed to raise over $45K!! The run is on the 25th, should be fun. Great to here from you! We don't get to the community page as often as we would like, but good to catch up. How are the kids? Hope you all are well! We are trying to get to Baltimore, but its a long way from us and we may not be able to swing it this year. Will let you know if we decide to go. Looks like Colin has offered to buy the beer!! (entry from Colin MaKenzie below) so perhaps we should take him up o that!! Kids are good.
Thanks for commenting on my post. I see you live in West Islip. I lived in Centereach, NY for two years quite some time ago. Where in upstate NY do you go? You have two sons with DMD? I would like to talk to you about how you cope with this and any types of medication your sons are taking. I have four children, Andrew being the youngest and having DMD. His illness has affected my life drastically and I have a hard time coping with the obstacles he will face in the near future. How are your boys doing?
He's with you all the time...he's all around and watching and there to talk to anytime even if not out loud...you think of him and if sad, he touches your heart and you just have to know it...he's helping so many others at the same time but, always with you and have no doubt. xoxo
Yes, we should have and are very grateful that we were able to send your family their own set of "Moments Butterfly" Candle Holders along with a set of candles, thru "Scents for Duchenne". Thank you for sharing your story of your son with another family who shared about their son to your family of how your special sons visit with each of your families on your page under comments. Your corresponses between each other touched our hearts that helped us make our "Scents for Duchenne" Feb. selection!
Hope all is well with the Poole Family,