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Renee Owens
  • Female
  • Pella, IA
  • United States
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Renee Owens's Page

Latest Activity

Renee Owens might attend PPMD's event
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PPMD's Every Single [One] Tour: Seattle, WA at Seattle, WA

March 26, 2017 all day
Registration for this FREE day-long meeting for families is now open! Click here to register. ------In an effort to reach every single family facing a Duchenne diagnosis in the U.S., PPMD has launched a multi-year community experience called the Every Single [One] Tour. Combining each of the pillars that make up PPMD’s mission – To End Duchenne – the Every Single [One] Tour brings updates on research, advocacy, and care to…See More
Feb 5
Renee Owens is attending PPMD's event
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Webinar: How You Can Help PPMD’s Advocacy Agenda at Online Webinar - Eastern Time Zone

February 11, 2014 from 1pm to 2pm
PPMD’s advocacy strategy is multi-agency (FDA, NIH, CDC) and multi-layered. Yes, we focus on legislation like the MD-CARE Act which has transformed the landscape in Duchenne. But we also work to shape regulatory policies that reflect the needs of our community, meeting with the FDA and EMA about how the patient voice can best be utilized to speed access to potential therapies in Duchenne. On February 11th , Pat Furlong, Ryan Fischer and Dave Zook (FaegreBD) provided an overview of PPMD’s…See More
Feb 11, 2014
Renee Owens is now a member of PPMD Community
Sep 20, 2013

Profile Information

About me:
Our son was diagnosed with MD spring of 2013. After months of testing and a muscle biopsy they determined our son has Becker MD. They concluded he does make dystrophin but it is abnormal. They do not know where the issue is in his gene so we are hopeful with further research to find an answer some day. As for now we are living life to the fullest every day!
About my family:
My husband and I were married in 2000. We have two children - Jacob born in 08 who has BMB and Rebekah born in 2010. We went through a rough time adjusting to the news of MD. Now we realize it doesn't define him. We do as much as we can when we can. We adapt where needed but live life everyday making it the best day we can!
Name(s) of child(ren)/individual(s) with Duchenne:
Jacob Paul Owens
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Pella
State:
Iowa

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