Renee Owens's Page

Registration for this FREE day-long meeting for families is now open! Click here to register. ------In an effort to reach every single family facing a Duchenne diagnosis in the U.S., PPMD has launched a multi-year community experience called the Every Single [One] Tour. Combining each of the pillars that make up PPMD’s mission – To End Duchenne – the Every Single [One] Tour brings updates on research, advocacy, and care to…See More

PPMD’s advocacy strategy is multi-agency (FDA, NIH, CDC) and multi-layered. Yes, we focus on legislation like the MD-CARE Act which has transformed the landscape in Duchenne. But we also work to shape regulatory policies that reflect the needs of our community, meeting with the FDA and EMA about how the patient voice can best be utilized to speed access to potential therapies in Duchenne. On February 11th , Pat Furlong, Ryan Fischer and Dave Zook (FaegreBD) provided an overview of PPMD’s…See More