Ren
  • Male
  • Brussels
  • Belgium
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Ren joined PPMD's group
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Duplications

Nov 20, 2019
72 Comments
Ren joined PPMD's group
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Duchenne Parents

Nov 20, 2019
52 Comments
Ren added a discussion to the group Becker Parents
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Dearth of Becker clinical trials

Here is the message I tried recently to post at the Advisory Committee Group:I couldn't find a way to comment on the news on the website, which would be a useful feature for users as well as the staff who write the news.This message is about the September 18 recap regarding the Duchenne platform trial community meeting.I am in favor of all the options put forward, but I am more than surprised that you didn't address the Becker patients as well.Becker is really part of the Duchenne community,…See More
Oct 16, 2019
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Ren joined PPMD's group
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Becker Parents

Oct 16, 2019
26 Comments
Ren replied to Kirubha Balakumar's discussion IV port for exon 51
"Does Exondys 51 help DMD amenable patients?"
Aug 26, 2019
Ren is now a member of PPMD Community
Aug 26, 2019
Welcome Them!

Profile Information

About me:
60 year old male, father of a Becker boy for what it means, as there is a continuum between Duchenne and Becker.
About my family:
Wonderful wife & kids, but the nagging issue which brings me here.
Name(s) of child(ren)/individual(s) with Duchenne:
Sacha
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Brussels

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