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  • Brussels
  • Belgium
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Ren's Page

Latest Activity

Ren joined PPMD's group
Nov 20, 2019
Ren joined PPMD's group
Nov 20, 2019
Ren added a discussion to the group Becker Parents

Dearth of Becker clinical trials

Here is the message I tried recently to post at the Advisory Committee Group:I couldn't find a way to comment on the news on the website, which would be a useful feature for users as well as the staff who write the news.This message is about the September 18 recap regarding the Duchenne platform trial community meeting.I am in favor of all the options put forward, but I am more than surprised that you didn't address the Becker patients as well.Becker is really part of the Duchenne community,…See More
Oct 16, 2019
Ren joined PPMD's group
Oct 16, 2019
Ren replied to Kirubha Balakumar's discussion IV port for exon 51
"Does Exondys 51 help DMD amenable patients?"
Aug 26, 2019
Ren is now a member of PPMD Community
Aug 26, 2019

Profile Information

About me:
60 year old male, father of a Becker boy for what it means, as there is a continuum between Duchenne and Becker.
About my family:
Wonderful wife & kids, but the nagging issue which brings me here.
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:

Comment Wall (1 comment)

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At 1:49pm on February 11, 2021, Maris A said…

Good Day,
How is everything with you, I picked interest on you after going through your short profile and deemed it necessary to write you immediately. I have something very vital to disclose to you, but I found it difficult to express myself here, since it's a public site.Could you please get back to me on:( ) for the full details.
Have a nice day
Thanks God bless


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