Raymond Esquivel
  • Male
  • San Diego,Ca
  • United States
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  • *Pearl*
  • Mitch
  • Rebecca Saulsbury
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Profile Information

About me:
My names Raymond but most people call me Ray. I am 21 years of age, I was diagnosed with Duchenne back in 1993 when I was 7 years of age. I have been using a powerchair full time since I was 11. I moved in with my grandparents in 2003 after I had a spinal fusion. Before that I was fully independent although I am more limited now I know in the long run it was worth it because I now can have a longer life knowing that I have done something to prevent damage to my internal organs. I obtained my G.E.D. in 2005 and went to a community college recently I quit school to pursue my dream of becoming a hip-hop recording artist you can hear my music here www.myspace.com/raywh33ls. I am currently looking for a record deal. In my free time I like listening to music, playing video games, and hangin out with friends and family. Well, thats a lil about me if you wanna know more just ask.

later.
Age(s) of child(ren)/individual(s) with Duchenne:
19 or older
City:
San Diego,Ca

Raymond Esquivel's Blog

alternative treatments for Dmd

Posted on June 22, 2008 at 5:07pm 4 Comments

Hi, I'm wondering if anyone has tried any alternative treatments for MD. Because I am considering trying Royal Jelly Pills. I found this:



Royal Jelly is a powerfull antioxidant and therefore protects cells against damage caused by free radicals. Researchers found that antioxidant supplements slow down the muscular deterioration for people with muscular dystrophy.



Many more research should be conducted, there are no real evidence, but some testimonials. Royal Jelly DOES NOT… Continue

Comment Wall (4 comments)

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At 4:24pm on August 4, 2008, Rebecca Saulsbury said…
Hi Raymond,
nice to meet you.
I have an almost 8 year old and live, day by day, knowing there are guys like you making your own way and living your life right. Thanks for giving this mama hope that my son will do it too.
Rebecca in Berkeley
At 7:56pm on July 2, 2008, cheryl cliff said…
Hi Ray,

Welcome! Please give consideration to joining up with the Cal families because we need your input.

cheryl
At 3:50am on June 23, 2008, Julie Garcia said…
Hi Raymond!

I wanted to let you know that I have not heard a lot of parents/families using royal jelly pills. I would go to the Discussion Forum and look under the Research area. You can re-port your question there.

Also, I would suggest under Groups to look at the California group and join. You have so much information I am sure you can share with us. We have information we can share with you.

You can learn about important updates. For example, there is the re-authorization MD Care bill we are trying to get congressional support. Both our California Senators have signed but we are now trying to get more House member signatures in California. There is also the petition for us to sign to gain support for ending duchennes.

Have you registered in the Duchenne Connect data base? The link is below:

https://www.duchenneconnect.org/index.php?option=com_comprofiler&task=registers

Register in the data base so that if a clinical trial is available you may qualify and someone may contact you to participate. Be prepared to have all your medical information ready to provide in the data base. What you don't know you can add later.

I hope you find a lot of good information here. I provide a few suggestions.

One last thing, do you know your exact mutation? You may want to find out what it is. When you join the different groups you an learn so much and I hope it is good information for you.

Take care,

Julie
At 4:44pm on June 22, 2008, Julie Garcia said…
Raymond,

Welcome to the new PPMD website! There is a great California section for you to join and get information.

I am learning how to use this board and find the more I use it, the better I understand it.

I wish you and your family well.

All the best,

Julie
 
 
 

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