Wish you and your family very pleasant Diwali and great new year . I don't remember if we have met any time . I had come across one mr Rajiv in a Myocon seminar in chennai in jan 2012 .Are you the same person ?
I am giving DEFCORT to my son( now 7 years old). DEFCORT has less side effects. You can start giving DEFCORT on alternate days. It helps in preserving muscles+strength. Also, if you start DEFCORT, you need to give one calcium syrup also.
Have you done MLPA test for Ishan. It will help in knowing which exons are deleted etc. I think, this test happens at Gangaram,Delhi.
I am also also from Lucknow and my 7.5 year old also have DMD. I am currently in Netherlands.
Getting the news about DMD is a very tough period. Every on on this board has experinced this and as a community we try to support and help each other. Its a long long fight ahead of us, but we will make through.
Welcome. There is a whole world out there to help you and your family.