Rahul Singh
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  • Gurgaon
  • India
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Moving to the US. Which city could be a good place for Duchenne management?

Started this discussion. Last reply by Rupjani B Jul 14, 2014. 5 Replies

Hi All,I am moving to the US, and hoping to enrol my 4 year old son for etiplersen phase 3 trial. We have an option to move to any city of choice. Can you please suggest which could be the best city…Continue

Tags: care, Duchenne, US, city

 

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Profile Information

Age(s) of child(ren)/individual(s) with Duchenne:
0-3
City:
Gurgaon
State:
Haryana

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At 7:50am on November 13, 2013, Ambrish Kapadia said…

Hi Rahul 

Sorry to hear abt your son's diagonosis . My son was 18 mts old when he was diagonosied with DMD . Now 6.5 yrs .

We are   a group of parents in india who have been working hard towards initiating research and trial activity  indegenously . 

Since you are in Delhi i would suggest you contact Dr Aalok Makker who is one of the very active and intellectual  parents of our group . He resides in Delhi and is a father of 8 yr old DMD boy . Further i can also suggest you join www.mdsociety.org and upload your son's MLPA report there . There are already more than 450 parents registered there . 

Aaloks email id is aalok406@yahoo.com

Rgds 

Ambrish

My personal email id matex1884@gmail.com 

PS- You can also find Aalok  on this site in my friends list 

 
 
 

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