Rahul Singh's Discussions
Moving to the US. Which city could be a good place for Duchenne management?
Started this discussion. Last reply by Rupjani B Jul 14, 2014. 5 Replies 0 Favorites
Hi All,I am moving to the US, and hoping to enrol my 4 year old son for etiplersen phase 3 trial. We have an option to move to any city of choice. Can you please suggest which could be the best city…Continue
Rahul Singh's Page
Profile Information
- Age(s) of child(ren)/individual(s) with Duchenne:
- 0-3
- City:
- Gurgaon
- State:
- Haryana
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Hi Rahul
Sorry to hear abt your son's diagonosis . My son was 18 mts old when he was diagonosied with DMD . Now 6.5 yrs .
We are a group of parents in india who have been working hard towards initiating research and trial activity indegenously .
Since you are in Delhi i would suggest you contact Dr Aalok Makker who is one of the very active and intellectual parents of our group . He resides in Delhi and is a father of 8 yr old DMD boy . Further i can also suggest you join www.mdsociety.org and upload your son's MLPA report there . There are already more than 450 parents registered there .
Aaloks email id is aalok406@yahoo.com
Rgds
Ambrish
My personal email id matex1884@gmail.com
PS- You can also find Aalok on this site in my friends list