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Rahul Deshpande Male Auburn, NY United States: Favorite

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Duchenne Parents

248 members
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Outliers - Intermediate …

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Medication/Supplement Jo…

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India

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Rahul Deshpande's Discussions

Moving to Auburn NY

Started May 27, 2015 0 Replies 0 Favorites

We are moving from India to Auburn NY. My son is 9 years with DMD due to exon 44 deletion. Any suggestion on clinic that we should take our son. Also any clinical trial we can enroll him. I have very…Continue

Youngevity and Vector Machine

Started this discussion. Last reply by Keith Van Houten Sep 8, 2014. 2 Replies 0 Favorites

I read that a combination of Youngevity supplements and Vector machine is giving good results for DMD children. Some are only trying Vector machine and some are trying only the Youngevity…Continue

Can Atalurin be of any benefit for Children with deletion

Started this discussion. Last reply by Trinh Nguyen Aug 6, 2014. 1 Reply 0 Favorites

Atalurin is now approved and is said to be the first cure for DMD. My son is having deletion of 44 exon. Was wondering if Atalurin can give some benefit in deletion cases also.Continue

Stem Cell Therapy

Started Jul 26, 2014 0 Replies 0 Favorites

In India many DMD patients are undergoing Stem Cell therapy and there is some improvement seen. At this moment Stem Cell therapy seems to be the only treatment that is showing some sort of…Continue

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Rahul Deshpande's Page

Profile Information

About my family:: I have two sons

Name(s) of child(ren)/individual(s) with Duchenne:: Rohan Deshpande

Age(s) of child(ren)/individual(s) with Duchenne:: 7-12

City:: Auburn

State:: New York

Comment Wall (8 comments)

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At 7:53pm on December 11, 2018, Nithin Dev Bandakka said…: Hi Rahul,
I read about your comment you trying Ayurvedic treatments. Could you share if there is some positive outcome with it?

At 11:12am on July 25, 2015, amit said…: Thx for reply sir actually I got my sons gene test report today and it is Neel but cpk level is 26000. Some reports stil not have performed

At 4:57pm on May 8, 2015, Rachel Sedacca-Replogle said…: Thank you for requesting my friendship. I am a stepmom and am trying to get a grasp on DMD and figure out what CAN be done. Look forward to learning along with everyone else.

At 7:00am on November 24, 2014, DEEPAK ARORA said…: HELLO MR RAHUL., I JUST WANT TO GET SOME MORE INFORMATION FROM YOU ABOUT THE SAME.. CAN WE TALK?? PLEASE SEND ME YOUR NUMBER..

At 3:26pm on July 25, 2014, himanshu Sharma said…: Hi Rahul,

i consulted with Doctor about the Idebenone(Catena), but she said, medicine has not shown very promising result .. I also heard Dr Prasad Arving Rasal , how about his medicines, any improvement. i am planning to consult him as well...

At 12:56pm on July 21, 2014, Satish said…: Hi Rahul, what is a best way to reach you. your phone number/email? Thanks.

At 4:56am on July 10, 2014, himanshu Sharma said…: Hi Rahul ,

My son is 5.5 year old and his DMD detected 1 month ago. There is not promising trial running at the moment. we are seeking for any other alternative treatment . Do you see any improvement in you Son on Hemeopathic medicine ?

At 12:40pm on July 7, 2014, himanshu Sharma said…: Hi Rahul,

How old is he, what is the symptoms right now. are he taking any other drugs, like homeopathy etc..