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Rahul Deshpande
- Male
- Auburn, NY
- United States
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Rahul Deshpande's Groups
Rahul Deshpande's Discussions
Moving to Auburn NY
Started May 27, 2015 0 Replies 0 Favorites
We are moving from India to Auburn NY. My son is 9 years with DMD due to exon 44 deletion. Any suggestion on clinic that we should take our son. Also any clinical trial we can enroll him. I have very…Continue
Youngevity and Vector Machine
Started this discussion. Last reply by Keith Van Houten Sep 8, 2014. 2 Replies 0 Favorites
I read that a combination of Youngevity supplements and Vector machine is giving good results for DMD children. Some are only trying Vector machine and some are trying only the Youngevity…Continue
Can Atalurin be of any benefit for Children with deletion
Started this discussion. Last reply by Trinh Nguyen Aug 6, 2014. 1 Reply 0 Favorites
Atalurin is now approved and is said to be the first cure for DMD. My son is having deletion of 44 exon. Was wondering if Atalurin can give some benefit in deletion cases also.Continue
Stem Cell Therapy
Started Jul 26, 2014 0 Replies 0 Favorites
In India many DMD patients are undergoing Stem Cell therapy and there is some improvement seen. At this moment Stem Cell therapy seems to be the only treatment that is showing some sort of…Continue
Rahul Deshpande's Page
Profile Information
- About my family:
- I have two sons
- Name(s) of child(ren)/individual(s) with Duchenne:
- Rohan Deshpande
- Age(s) of child(ren)/individual(s) with Duchenne:
- 7-12
- City:
- Auburn
- State:
- New York
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I read about your comment you trying Ayurvedic treatments. Could you share if there is some positive outcome with it?
Thank you for requesting my friendship. I am a stepmom and am trying to get a grasp on DMD and figure out what CAN be done. Look forward to learning along with everyone else.
HELLO MR RAHUL., I JUST WANT TO GET SOME MORE INFORMATION FROM YOU ABOUT THE SAME.. CAN WE TALK?? PLEASE SEND ME YOUR NUMBER..
Hi Rahul,
i consulted with Doctor about the Idebenone(Catena), but she said, medicine has not shown very promising result .. I also heard Dr Prasad Arving Rasal , how about his medicines, any improvement. i am planning to consult him as well...
Hi Rahul, what is a best way to reach you. your phone number/email? Thanks.
Hi Rahul ,
My son is 5.5 year old and his DMD detected 1 month ago. There is not promising trial running at the moment. we are seeking for any other alternative treatment . Do you see any improvement in you Son on Hemeopathic medicine ?
Hi Rahul,
How old is he, what is the symptoms right now. are he taking any other drugs, like homeopathy etc..