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Rachel Sedacca-Replogle
  • Female
  • Ventura, CA
  • United States
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  • Rahul Deshpande
  • Luci Nilson
  • CHRISTINA RODRIGUEZ

Rachel Sedacca-Replogle's Discussions

Results from physical therapy?

Started this discussion. Last reply by Sam Oct 27, 2016. 1 Reply

Our son George who just turned thirteen is non ambulatory as of about three years ago.  He has been living with his Mom and the only PT heis receiving is once a month for 30 minutes.  He is not doing…Continue

 

Rachel Sedacca-Replogle's Page

Latest Activity

Sam replied to Rachel Sedacca-Replogle's discussion Results from physical therapy?
"Dear Rachel i need to know what PT is useful as well as i need to do it for my 2.5 son. hopefully someone help us in this regard. thanks Sam"
Oct 27, 2016
Rachel Sedacca-Replogle posted an event
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The Percy Project at Ventura Beach Club

September 25, 2016 from 12pm to 9pm
Raising money to buy a shorty school bus with a wheelchair lift for local transport and family adventures!See More
Aug 8, 2016
Rachel Sedacca-Replogle favorited PPMD's blog post What is Epicatechin?
May 11, 2015
Rachel Sedacca-Replogle favorited Kathi Kinnett's blog post 2015 Newly Updated Vaccination Recommendations
May 11, 2015
Rachel Sedacca-Replogle posted a discussion

Results from physical therapy?

Our son George who just turned thirteen is non ambulatory as of about three years ago.  He has been living with his Mom and the only PT heis receiving is once a month for 30 minutes.  He is not doing physical therapy at home with his mother and is only with us every other weekend or 4 days a month.  We have seen a SHARP decline in his abilities to move his arms and upper body and feel it is due largely to the lack of exercise or PT being done.  What can you tell me about your experiences with…See More
May 11, 2015
Rachel Sedacca-Replogle joined MicahsDaddy's group
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California Families

This group is for families living in CA.
May 8, 2015
Rachel Sedacca-Replogle joined PPMD's group
May 8, 2015
Rachel Sedacca-Replogle favorited John D. Porter, PhD's blog post Santhera Releases Positive Data from Phase III Clinical Trial of Idebenone (Raxone®/Catena®) in Duchenne
May 8, 2015
Rachel Sedacca-Replogle favorited Tammy's discussion Nightly Protein/Amino Acid Supplementation helps reduce muscle breakdown
Dec 25, 2014
Rachel Sedacca-Replogle favorited Michele's discussion Deflazacort--Let's discuss
Oct 19, 2014
Rachel Sedacca-Replogle favorited Michele's discussion Deflazacort--Let's discuss
Oct 19, 2014
Rachel Sedacca-Replogle favorited Michele's discussion Deflazacort--Let's discuss
Oct 19, 2014
Rachel Sedacca-Replogle favorited Moein's discussion Pfizer Myostatin Inhibitor&HT-100
Oct 19, 2014
Rachel Sedacca-Replogle favorited Rachel Sedacca-Replogle's profile
Sep 20, 2014
Rachel Sedacca-Replogle favorited Rachel Sedacca-Replogle's profile
Sep 20, 2014
Rachel Sedacca-Replogle favorited PPMD's event September 24 Webinar: Early Pulmonary Care
Sep 20, 2014

Profile Information

About me:
I am a stepmom of three, starting out the summer with the kids during the week, as opposed to having them every other weekend. Looking to help be an advocate and also help build confidence, self esteem and independence.
About my family:
My husband is a hard working man, loves his three kids. Hellena is 17, George is 12 and Emily is 8. They live with their mother full time about 30 miles away and during the school year, they visit every other weekend.
Name(s) of child(ren)/individual(s) with Duchenne:
George
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Ventura
State:
CA

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At 11:18am on June 23, 2014, Luci Nilson said…

Hi Rachel ~

We live in Mission Viejo - which is South Orange County. We are involved with PPMD as much as we can - both my husbank & I work full-time. We won't be attending the conference this week in Chicago which we're very disappointed about.

 

How about you?

 

Luci

 
 
 

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