"Dear Rachel
i need to know what PT is useful as well as i need to do it for my 2.5 son.
hopefully someone help us in this regard.
thanks
Sam"
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Rachel Sedacca-Replogle
- Female
- Ventura, CA
- United States
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Results from physical therapy?
Started this discussion. Last reply by Sam Oct 27, 2016. 1 Reply 0 Favorites
Our son George who just turned thirteen is non ambulatory as of about three years ago. He has been living with his Mom and the only PT heis receiving is once a month for 30 minutes. He is not doing…Continue
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The Percy Project at Ventura Beach Club
September 25, 2016 from 12pm to 9pm
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Results from physical therapy?
Our son George who just turned thirteen is non ambulatory as of about three years ago. He has been living with his Mom and the only PT heis receiving is once a month for 30 minutes. He is not doing physical therapy at home with his mother and is only with us every other weekend or 4 days a month. We have seen a SHARP decline in his abilities to move his arms and upper body and feel it is due largely to the lack of exercise or PT being done. What can you tell me about your experiences with…See More
Profile Information
- About me:
- I am a stepmom of three, starting out the summer with the kids during the week, as opposed to having them every other weekend. Looking to help be an advocate and also help build confidence, self esteem and independence.
- About my family:
- My husband is a hard working man, loves his three kids. Hellena is 17, George is 12 and Emily is 8. They live with their mother full time about 30 miles away and during the school year, they visit every other weekend.
- Name(s) of child(ren)/individual(s) with Duchenne:
- George
- Age(s) of child(ren)/individual(s) with Duchenne:
- 7-12
- City:
- Ventura
- State:
- CA
Comment Wall (1 comment)
- At 11:18am on June 23, 2014,
Luci Nilson said…
Hi Rachel ~
We live in Mission Viejo - which is South Orange County. We are involved with PPMD as much as we can - both my husbank & I work full-time. We won't be attending the conference this week in Chicago which we're very disappointed about.
How about you?
Luci
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