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Pramit Patel Male Ahmedabad, Gujarat India: Favorite

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Name(s) of child(ren)/individual(s) with Duchenne:: Rohin Patel & Daivik Patel

At 8:01am on March 15, 2014, VIJENDER BAJAJ said…: Hi every one

I seen some mail on yahoo group of dmd talk their son has same deletion of exon -44 as my son but they told it is inframe what is this mean because their son age 35+. there is any test which help in our case. We have done dmd test in AIIMS my son has deletion of exon 44 . pl help me

At 7:06am on November 13, 2013, Rahul Singh said…: Hi Pramit,

I am Rahul from Gurgaon and my 3 year old son has been diagnosed with DMD recently. Hope we can connect.

Thanks.
Rahul

At 8:42pm on June 26, 2013, Keith Van Houten said…: It's complicated. Accept my friend request so we can send private messages, and I'll reply there.

At 10:19am on June 20, 2013, Ambrish Kapadia said…: Pramit ,

I understand what you must be going thru now .Had your son not showing any symptoms ,, you would have not come to know that he is DMD .

So take your time .You can get in touch with me anytime whenever u feel ok

Best Rgds

Ambrish

At 12:46am on June 20, 2013, Ambrish Kapadia said…: Hello mr pramit ,

Sorry to know abt your son .

My son was detected when he was 18 mts old with Dmd , now he is 6 yrs old .we are a group of parents in Mumbai , who are associated with organisation www.mdsociety.org

I think you should get your self registered with the society .We are an interactive group who get together occasionally and also in touch with various latest researchers going around in the world for DMD .

If you are further interested you can write to me on matex1884@gmail.com

Rgds

Ambrish Kapadia from Mumbai