I seen some mail on yahoo group of dmd talk their son has same deletion of exon -44 as my son but they told it is inframe what is this mean because their son age 35+. there is any test which help in our case. We have done dmd test in AIIMS my son has deletion of exon 44 . pl help me
My son was detected when he was 18 mts old with Dmd , now he is 6 yrs old .we are a group of parents in Mumbai , who are associated with organisation www.mdsociety.org
I think you should get your self registered with the society .We are an interactive group who get together occasionally and also in touch with various latest researchers going around in the world for DMD .
If you are further interested you can write to me on matex1884@gmail.com
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Hi every one
I seen some mail on yahoo group of dmd talk their son has same deletion of exon -44 as my son but they told it is inframe what is this mean because their son age 35+. there is any test which help in our case. We have done dmd test in AIIMS my son has deletion of exon 44 . pl help me
I am Rahul from Gurgaon and my 3 year old son has been diagnosed with DMD recently. Hope we can connect.
Thanks.
Rahul
I understand what you must be going thru now .Had your son not showing any symptoms ,, you would have not come to know that he is DMD .
So take your time .You can get in touch with me anytime whenever u feel ok
Best Rgds
Ambrish
Sorry to know abt your son .
My son was detected when he was 18 mts old with Dmd , now he is 6 yrs old .we are a group of parents in Mumbai , who are associated with organisation www.mdsociety.org
I think you should get your self registered with the society .We are an interactive group who get together occasionally and also in touch with various latest researchers going around in the world for DMD .
If you are further interested you can write to me on matex1884@gmail.com
Rgds
Ambrish Kapadia from Mumbai