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Polly Sundeen
  • Female
  • Tustin, California
  • United States
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Polly Sundeen's Friends

  • thomas  m golf
  • mariela pedroza
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Polly Sundeen's Page

Profile Information

About my family:
Mommie to Justine (21y.o.) and Cole (11y.o.)
Cole was dx with DMD in 5/2002. He has a deletion of exons 46-47.
Name(s) of child(ren)/individual(s) with Duchenne:
Cole
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Tustin, CA (Orange County)

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Comment Wall (26 comments)

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At 8:29pm on October 5, 2012, thomas m golf said…

my son was 7 yrs and i am lucky he is still walking if you need to call me please do my number  is 708 8782599

At 11:37am on August 14, 2010, thomas m golf said…
he gets aound very good
At 11:36am on August 14, 2010, thomas m golf said…
hi my name is tom golf my son has dmd 46 -47 and he is 8yrs and he still get very well how bad is this type of deletion
At 5:46pm on September 30, 2009, Evelyn said…
Hi Polly
This is Evelyn Nellius. we met in Ohio last week. it was nice to chat with you. I hope your visit went well. Thanks again
Evelyn
At 8:44pm on August 2, 2009, Char Burke said…
Hi Polly - Cole looks great - he looks so thin from his photos. What are you doing that he does not seem to be getting any weight gain or puffy face from the deflazacort? Char Burke - Will's mom in Seattle.
At 4:28pm on March 26, 2009, Jean said…
Polly - thatn you for your quick reply re: Masters. I am the grandmother, and have relayed the info. to Peyton's mother. They are on the way to Dr. as I write. Love your pics. Cole looks a lot like Peyton (same age) expecially in pics. 2,3, and 10. Love your page. God Bless, and thanks again!
At 12:15am on February 19, 2009, christine good said…
Hi POlly,
I was told you may have some good info on charitable flights to Ohio. Can you pls help me with my 1st appt there?


Christine
At 6:36pm on February 16, 2009, Gregory said…
Please join our San Francisco Bay Area Families group.

Greg
At 11:40am on February 1, 2009, Lynne Taylor said…
Hi Polly
I have just joined the deletions group. I noticed that Cole has deletions of exon 46-47. My son Ross is 14 years old and has an out of frame deletions of exon 46 & 47.
best wishes
Lynne
At 1:57am on December 27, 2008, Kim Innabi said…
Hi Polly - The Eiffel Tower is done!!!! No help from me needed -good thing for that - I'm no help with anything but supplies sorting baggies! I added a picture on my page - Nicholas was so proud of himself! Talk to you soon,

Kim

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