Hi Polly - Cole looks great - he looks so thin from his photos. What are you doing that he does not seem to be getting any weight gain or puffy face from the deflazacort? Char Burke - Will's mom in Seattle.
Polly - thatn you for your quick reply re: Masters. I am the grandmother, and have relayed the info. to Peyton's mother. They are on the way to Dr. as I write. Love your pics. Cole looks a lot like Peyton (same age) expecially in pics. 2,3, and 10. Love your page. God Bless, and thanks again!
Hi Polly - The Eiffel Tower is done!!!! No help from me needed -good thing for that - I'm no help with anything but supplies sorting baggies! I added a picture on my page - Nicholas was so proud of himself! Talk to you soon,
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my son was 7 yrs and i am lucky he is still walking if you need to call me please do my number is 708 8782599
This is Evelyn Nellius. we met in Ohio last week. it was nice to chat with you. I hope your visit went well. Thanks again
I was told you may have some good info on charitable flights to Ohio. Can you pls help me with my 1st appt there?
I have just joined the deletions group. I noticed that Cole has deletions of exon 46-47. My son Ross is 14 years old and has an out of frame deletions of exon 46 & 47.
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