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Pilar Rizzo
- Female
- Nutley, NJ
- United States
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Profile Information
- About me:
- My name is Pilar Rizzo I live in New Jersey .
- About my family:
- I live in Nutley with my husband and 3 kids.
husband- Adam Sanchez\
Son_ Adrian Sanchez
Son-Lusiano Sanchez
Son_Sevastian Sanchez
- Name(s) of child(ren)/individual(s) with Duchenne:
- Sebastian Sanchez
- Age(s) of child(ren)/individual(s) with Duchenne:
- 7-12
- City:
- Nutlet, New Jersey
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probably!, my phone is 973-282-6090 cell
address: 71 terrace ave Nutley, nj 07110
I will love to talk to you and, get together!
Did we meet a few years back at an MDA "support" meeting -- I use that term loosely because those meetings were such a waste. But I met a Pilar there at least 4 years ago. You've found PPMD and that is wonderful. We have a great NJ group too -- NJ FACES. we get together every other month for meetings and we have some annual parties. It's really great having eachother. Go to NJFACES on this site and sign in too.
Kevin is 10 and doing pretty good -- just the same as your Sebastian. In fact, we are contracting for a one-level home in our town. I live in Bergen County. If you are the same Pilar you aren't far from me. Kevin has a piece of DNA missing on exxon 20 and it is called a frameshift deletion -- sounds similar to your results. so much to talk about. Kevin switched to deflazacort two years ago due to weight gain. Takes it every day! along with many other supplements. Send me an e-mail on my e-mail at pattifrank54@optonline.net and we can exchange ph. numbers. Would love to talk to you. regards, Patti