"Yes I was taking him to Kingston at the Hotel Dieu and now I take him to St. Mary's Hospital as he is now 19 and goes to adult clinic now.
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Penny Pratt
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- Odessa, Ontario
- Canada
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Lack of Appetite and weight loss
Started this discussion. Last reply by Penny Pratt Jan 5, 2010. 12 Replies 0 Favorites
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Penny Pratt replied to Angie Evans's discussion Who pays for your deflazacort? in the group Canadian FamiliesPenny Pratt replied to Angie Evans's discussion Who pays for your deflazacort? in the group Canadian Families"Hi Anige,, I too pay for deflazacort for my son. I pay 70 dollars for a 3 month supply.. The hospital used to pay for Dillon's deflazacort as it was for research at one point but we have been paying now for about 2 years.. I live in Odessa…"
Penny Pratt posted a discussionLack of Appetite and weight loss
I was wondering if there are any other families out there that have a son in there teens that have a lack of appetite..My son just does not feel like eating he said he is not hungry. He has had a weigth loss which I can notice. He goes to the doctors this month I am hoping they have some answers for me. He recently had a rod put in his back in December 2008 and at this time he weighed 82 lbs and he is 17.I appreciate any information anyone can give me.Thanks PennySee More
Comment Wall (5 comments)
- At 9:39am on September 23, 2009,
Misty Lundell said… - Thank you for adding me as your friend. What are the the thigns I need to do to prepare?
- At 10:41am on September 22, 2009,
Kathy Cunliffe said… - Hi Penny...thanks for adding me as a friend!
- At 6:54pm on September 11, 2009,
Susana Arroyo said… - Thanks for the add Penny!
Have a great weekend! ;)
- At 1:11pm on February 23, 2009,
jenn said… - thanks for your comment on step parents...my husband is wonderful with my two boys, he hates it when i call them my boys, he considers them his. their father hasn't seen them in 4 years, his choice. this has been hard on my boys, especially max, who is 7 and doesn't really remember his dad. i just wonder if my husband can ever really know how hard it is to watch your kids go through this. Austin is 10 and can only walk a little now, it is so hard to watch. craig does everything for austin, i cant carry him anymore, he really is a great and kind guy. i just get jelous that his twin 4 year olds are healthy, i know thats a horrible way to be but sometimes i cant help it. im lucky, our baby is fine, and my son max has no effects yet... sorry for venting, sometimes i don't know im having a hard time until i start writing!
- At 12:27am on February 23, 2009,
Laurie Hoovestol said… - Hello and welcome! My son just turned 17 in January. It's so great that your daughter helps him out when she can.
Profile Information
- About me:
- I am a stay at home mother of 2 that runs a homedaycare. I enjoy spending time with my family and doing things outdoors..
- About my family:
- I have 2 children. My son Dillon is 17 years old and he has a sister Raquel who is 11 years old. She thinks the world of her brother and assists him alot when the need arises. I have been in a relationship for the past 5 years with Dan who is a wonderful man and loves my children dearly. He has 2 sons of his own, who are 23 and 21 and they also think the world of my kids.
- Name(s) of child(ren)/individual(s) with Duchenne:
- Dillon
- Age(s) of child(ren)/individual(s) with Duchenne:
- 13-18
- City and State:
- Odessa, Ontario
- Country:
- Canada
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