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Pat Nivens
- Female
- Kings Mountain, NC
- United States
Pat Nivens's Page
Latest Activity
Profile Information
- About me:
- I am a Grammy. My only grandson Brady, has DMD. He's 8 years old and the light of our lives. I'm trying to get in touch with other grandparents. I live near Charlotte NC
- About my family:
- I have two daughters. One grandson, Brady and one granddaughter Jada. They are each half of what makes me whole.
- Name(s) of child(ren)/individual(s) with Duchenne:
- Brady Patrick Williams
- Age(s) of child(ren)/individual(s) with Duchenne:
- 7-12
- City and State:
- Kings Mtn NC
- Country:
- United States
Pat Nivens's Photos
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Events
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Paint for Peyton to end Duchenne
June 8, 2012 from 6:30pm to 7:30pm – Spirited Art
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© 2012 Created by PPMD.
Comment Wall (2 comments)
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Hey. Jude Samulski is Director of Gene Therapy and has devoted his life to finding a cure for DMD. He is the most compassionate, brilliant researcher who is so commited to this disease. Did you see our websites? genetherapy.unc.edu and also
http://cfx.research.unc.edu/wellstone/
I'm the MomMom of 9 year old Jacob. We live in Pa. I in Doylestown and my daughter and her family in Lansdale.
Jacob is my undisputable soul mate so I know what you mean about 1/2 of what makes you whole.
If you have any questions or just want to talk you can email me at donna@donnadoolittle.com.
As you can see I'm known on the site as Jacobs Mommom:)