Hi Pat! I wanted to follow-up w. you. I thought you said you went to theraplay in WC. Are you happy with it? We do PT at dupont, but usually go to CHOP for regular visits. We have also been seen at AI, but I was very unhappy with Dr. Bean, even though he's supposed to be excellent. I was only able to see Dr. Scavina once, so after I switched to CHOP. We really wanted to do deflazacorte, and AI seeemed reluctant. Also, I had an extremely difficult time getting my son's records and test results from Alicia Clark, and even as I write this I am waiting for her to get back to me with the genetic testing results. AI is only 15 minutes from us, so I would be thrilled if I could regain a comfort level with them.
In the meantime, we love AI for therapy, but have also heard great things about theraplay.
How old is your son? Have you known about the diagnosis for a long time?