Pat
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  • Audubon PA
  • United States
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Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
Christopher
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Audubon PA

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Comment Wall (6 comments)

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At 3:18pm on April 15, 2009, Regina said…
Hi Pat! I wanted to follow-up w. you. I thought you said you went to theraplay in WC. Are you happy with it? We do PT at dupont, but usually go to CHOP for regular visits. We have also been seen at AI, but I was very unhappy with Dr. Bean, even though he's supposed to be excellent. I was only able to see Dr. Scavina once, so after I switched to CHOP. We really wanted to do deflazacorte, and AI seeemed reluctant. Also, I had an extremely difficult time getting my son's records and test results from Alicia Clark, and even as I write this I am waiting for her to get back to me with the genetic testing results. AI is only 15 minutes from us, so I would be thrilled if I could regain a comfort level with them.
In the meantime, we love AI for therapy, but have also heard great things about theraplay.

How old is your son? Have you known about the diagnosis for a long time?

Thanks for listening,
Regina
At 9:45am on April 7, 2009, Dina said…
I basically just asked about aqua therapy and she just gave me the script. I just wanted him to have more pt than the 2 days a week at school.
At 6:29pm on April 6, 2009, Dina said…
We go to a local rehab hospital around us. Dr. Scavina gave me a prescription for the therapy. He has been going for 2 months now.
At 3:32pm on April 2, 2009, Jacobs Mommom said…
Hi Pat:

I'm trying to respond to your email but my email is acting funky so thought I would send it this way too.

Sounds like logistically we may have a problem. I've already received one email from someone in Pittsburgh saying it would be too long a trip for them?

I wonder if they would allow us to have 2 PA sites?

We wouldn't really be able to do a fundraiser that would reach across PA Everyone could sell the tickets for the golf ball drop but wouldn't probably be able to attend.
At 12:30pm on February 6, 2009, Dina said…
I noticed that you go to DuPont. We also take our son there, do you see Dr. Scavina?
Dina
At 1:50pm on July 22, 2008, Jacobs Mommom said…
Hi Pat:

I am the MomMom of an 8 year old boy, Jacob, with DMD. I live in Doylestown, PA and he lives in Lansdale, PA.

Please go in and join the Pennsylvania board so that we can hopefully get everyone from PA together to meet.

Donna
 
 
 

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