Sorry I haven't been very active with everyone on this site. Hope everybody is doing well in Denver? I know your son is very young, however I have a few qusfions regarding health care in Denver Colorado, because I might be moving their.
Do you know if the health care system is good for poor people on ventilators with DMD?
How does Medicare/Medicaid work in colorado?
Do you know of anyone with DMD on a ventilator you could referr me to in Colorado?
What a gorgeous little boy!! He is just adorable! I bet you just love giving him big cuddles all the time.
How are you handling things since his diagnosis? I know, for a long time, it seemed so dark in our life, but we're getting there. As long as you have a good network of incredibly supportive friends, you will be okay. And whenever you need to talk about something that your friends won't understand (ie DMD-related or having a sick child) then you can come on here and we will be here to listen and/or give helpful advice.
I am really looking forward to meeting your whole family! After Christmas would be great. Both the pictures you and Michael have are darling!! What a cutie Christopher is! Have a wonderful holiday!!!