Hey Pam! I'm so glad to see you joined our FACES group. does Ryan have your email? You're welcome to come to the meetings, I'd really like to see you. How is JT? we haven't heard from them in awhile so I hope everyone is doing well.
Hi Pam. I was thinking about JT and wondered how he has been doing. I noticed there haven't been any caringbridge journal entries in awhile. Hope all is well. Is he still going to Cincinnati? We take Bradley for the third visit in June.
My son was diagnosed at age 6. He is taking prednisone and is still walking around and being active. He is however starting to show signs of weakness. This we have noticed this school year. He has trouble getting up the curb and steps are a constant struggle. He wears night splints too. Now he is 9 years old.