PAULA KERR
  • Female
  • Ireland
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  • Alina Popovici
  • Anna Mossiat
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PAULA KERR's Discussions

Non Carrier Mother with 3 sons living with DMD!

Started this discussion. Last reply by PAULA KERR Feb 1, 2014. 4 Replies

Dear Friends,Can anyone help me make sense of this!We have three sons diagnosed with DMD since November 2012 - Our sons are now 8 (duplications 3 -7) and 3 year old identical twins . I have been told…Continue

Help & Advice re starting Steroids

Started this discussion. Last reply by PAULA KERR May 1, 2013. 3 Replies

Hello, I need your help! Our three sons were diagnosed with DMD in November in 2012. We live in Ireland and were told that it is up to us if/when to start our seven year old on steroids. The plan is…Continue

 

PAULA KERR's Page

Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
PAULA KERR
Age(s) of child(ren)/individual(s) with Duchenne:
0-3, 4-6, 7-12
City:
ROSCOMMON
State:
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Comment Wall (4 comments)

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At 4:11pm on September 22, 2017, Kim Watters said…

 hi paula    kimmy  here ,  at   the moment   off   fb   don't when  or if  let me   on.   so  have  to   keep touch   here. how are   the   boys.

At 11:28am on April 24, 2013, Donna Moran said…

Hi Paula,

I read your comments and requests on this site. I live in Co. Kildare  and I have one son with Duchenne. He was diagnosed 2 and half years ago so I am a little further on than you. I remember well those days of shock and not knowing what to do next . Please e mail me on decdon98@eircom.net . I will give you my home number so I will talk to you and help you if  I can .  Regards

Donna moran

At 7:54am on February 4, 2013, Alina Popovici said…

Thank you so much ,Paula,it means a lot for me your words,i wish you to fight for your kids,because i beleave that God will do a miracle,we need all of us.take care of you ..thank u that you are a my friend now.God bless our sons,and let`s fight together.i wish a good day for now and thanks one more time

At 11:16pm on February 3, 2013, Harriet Meermann said…

My thoughts are with you daily. My grandson has duplications 5-7. I will be in Washington DC Feb. 10 to 12 lobbying for funding for research and for the FDA to speed up clinical trials and treatments for rare diseases such as duchenne. My grandson is 6 years old. Your boys are beautiful. I was in Ireland 5 years ago in Galway and Rosmuc, where my family came from. Our family is involved in fundraising for research for duchenne. We are here to help you in anyway we can. Harriet Nee-Meermann Miami Florida.

 
 
 

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