PAULA KERR's Discussions
Non Carrier Mother with 3 sons living with DMD!
Started this discussion. Last reply by PAULA KERR Feb 1, 2014. 4 Replies 0 Favorites
Dear Friends,Can anyone help me make sense of this!We have three sons diagnosed with DMD since November 2012 - Our sons are now 8 (duplications 3 -7) and 3 year old identical twins . I have been told…Continue
Help & Advice re starting Steroids
Started this discussion. Last reply by PAULA KERR May 1, 2013. 3 Replies 0 Favorites
Hello, I need your help! Our three sons were diagnosed with DMD in November in 2012. We live in Ireland and were told that it is up to us if/when to start our seven year old on steroids. The plan is…Continue
PAULA KERR's Page
Profile Information
- Name(s) of child(ren)/individual(s) with Duchenne:
- PAULA KERR
- Age(s) of child(ren)/individual(s) with Duchenne:
- 0-3, 4-6, 7-12
- City:
- ROSCOMMON
- State:
- Please Select...
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hi paula kimmy here , at the moment off fb don't when or if let me on. so have to keep touch here. how are the boys.
Hi Paula,
I read your comments and requests on this site. I live in Co. Kildare and I have one son with Duchenne. He was diagnosed 2 and half years ago so I am a little further on than you. I remember well those days of shock and not knowing what to do next . Please e mail me on decdon98@eircom.net . I will give you my home number so I will talk to you and help you if I can . Regards
Donna moran
Thank you so much ,Paula,it means a lot for me your words,i wish you to fight for your kids,because i beleave that God will do a miracle,we need all of us.take care of you ..thank u that you are a my friend now.God bless our sons,and let`s fight together.i wish a good day for now and thanks one more time
My thoughts are with you daily. My grandson has duplications 5-7. I will be in Washington DC Feb. 10 to 12 lobbying for funding for research and for the FDA to speed up clinical trials and treatments for rare diseases such as duchenne. My grandson is 6 years old. Your boys are beautiful. I was in Ireland 5 years ago in Galway and Rosmuc, where my family came from. Our family is involved in fundraising for research for duchenne. We are here to help you in anyway we can. Harriet Nee-Meermann Miami Florida.