"It's important to note that the safety was proved with boys between 10 and 18. High dose idebenone is toxic in vitro to brain cells http://www.ncbi.nlm.nih.gov/pubmed/21547417# so this dose may be dangerous to young kids. Remember that…"
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Ofir Arad
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- Barcelona, Spain
- Spain
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Ofir Arad's Groups
Ofir Arad's Discussions
Compound that Increases Muscle Mass
Started Jun 8, 2011 0 Replies 0 Favorites
mRNA Expression Signatures of Human Skeletal Muscle Atrophy Identify a Natural Compound that Increases Muscle Mass …Continue
Telomere alongation Astragaloside IV ?
Started this discussion. Last reply by Joshua's mom May 17, 2011. 1 Reply 0 Favorites
Someone knows something about this supplement?Continue
A new tool in genetic engineering
Started Mar 16, 2011 0 Replies 0 Favorites
Maybe interesting for non-sense stop mutations.Angew. Chem. Int. Ed. 50: 2896-2902 (2011)…Continue
Tags: ribosomes, orthogonal, protein, engineering, translation
X chromosome dosage compensation
Started Mar 4, 2011 0 Replies 0 Favorites
http://www.nature.com/nature/journal/v471/n7336/full/nature09757.htmlNature 471, 115–118 (03 March 2011)The…Continue
Ofir Arad's Page
Latest Activity
Ofir Arad joined Nimi Langer's group
Idebenone
As one of the only supplements passing phase IIa with prove of safety and efficacy for our kids (450 mg daily)idebenone phase IIa.pdf, we should start looking at this one seriously.See More
Ofir Arad posted a blog postControl devices with the mind
In a jaw-dropping feat of engineering, electronics turn a person's thoughts into commands for a robot. Using a brain-computer interface technology pioneered by University of Minnesota biomedical engineering professor Bin He, several young people have learned to use their thoughts to steer a flying robot around a gym, making it turn, rise, dip, and even sail through a ring.The technology may someday allow people robbed of speech and mobility by neurodegenerative diseases to regain function by…See More
Ofir Arad replied to Joanne Wechsler's discussion Ataluren"Does somebody knows anything about the effects of Ataluren on cognition?"
Ofir Arad replied to Char Burke's discussion Elevated ALTSGOT"The liver enzymes are very similar to muscle enzymes, the liver enzymes analysis is not designed to be done with other muscle enzymes in the blood. In DMD the muscle enzymes are very elevated in the blood so the result of the liver enzymes analysis…"
Tammy left a comment for Ofir Arad"Have you had any success with the amino acid supplements you are giving your son?"
Tammy replied to Ofir Arad's discussion aminogram"I am in the process of looking into this as well. I asked for an amino acid test and will be getting one this week. My concern is that the Neuro specialist at CHOP here in Philadelphia said the test can be variable depending on what the…"
Ofir Arad replied to Chad Campbell's discussion Newly Diagnosed"I am sorry, about the diagnosis, we know that its not easy. I dont know exactly when, But I am sure that we will see the cure for this disease. I think that deletion 48-54 could be treated with exon skipping 55."
Ofir Arad commented on Nimi Langer's group Patient Specific Exon Skipping -NOW!"Dear Nimi, can you update us please about this initiative?"
Ofir Arad joined Nimi Langer's group
Patient Specific Exon Skipping -NOW!
Pushing forward a venture that will concentrate on that. See More
Ofir Arad replied to Alissa's discussion Confused: Shouldn't a blood test and a full array show DMD?"As Carrie says mutations after exon 63 can explain the developmental delay. A mutation after exon 63 causes the lack of expression of all the isoforms of dystrophyn including dp71 that is important for the the brain development. You can find a…"
Ofir Arad added a discussion to the group ataluren trial following up
Ataluen and Brain blood barrier
Does somebody knows if ataluren can go through the brain-blod barrier. I have asked PTC but they are not responding me... See More
Profile Information
- About me:
- I'm chemist, doing research for the medical devices industry.
- About my family:
- We have 3 childrens: a couple of twins, a girl and a boy with a nonsnense stop mutation in the dystrophyn gene, and a litlle baby girl.
- Name(s) of child(ren)/individual(s) with Duchenne:
- Eyal
- Age(s) of child(ren)/individual(s) with Duchenne:
- 4-6
- City:
- Barcelona, Spain
Ofir Arad's Blog
Control devices with the mind
Posted on June 4, 2013 at 11:57pm 0 Comments 0 Favorites
In a jaw-dropping feat of engineering, electronics turn a person's thoughts into commands for a robot. Using a brain-computer interface technology pioneered by University of Minnesota biomedical engineering professor Bin He, several young people have learned to use their thoughts to steer a flying robot around a gym, making it turn, rise, dip, and even sail through a ring.
The technology may someday allow people robbed of speech and mobility by neurodegenerative diseases to regain… Continue
The technology may someday allow people robbed of speech and mobility by neurodegenerative diseases to regain… Continue
Upregulators of Utrophin Production
Posted on May 6, 2011 at 2:53pm 0 Comments 0 Favorites
Discovery of 2-Arylbenzoxazoles as Upregulators of Utrophin Production for the Treatment of Duchenne Muscular Dystrophy
http://pubs.acs.org/doi/abs/10.1021/jm200135z
http://pubs.acs.org/doi/abs/10.1021/jm200135z
Comment Wall (4 comments)
- At 2:58am on May 30, 2012, Tammy said…
Have you had any success with the amino acid supplements you are giving your son?
- At 2:04pm on June 6, 2010, celia garcia gomez said…
- Hola de nuevo, disculpa Arad ,antes solo te pregunte por tu hijo, en vez de hacerlo, por tu familia, ya que pronto sereis padres ,sino he leido mal.SALUDOS
- At 1:57pm on June 6, 2010, celia garcia gomez said…
- Hola,Ofir Arad, gracias por el aviso ¿Cómo esta tu hijo? Saludos
- At 4:12pm on June 3, 2010, celia garcia gomez said…
- GRACIAS, Arad , por tu información, nos pondremos en contacto con nuestro médico. Me gustaría seguir contactando, hasta pronto.SALUDOS
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2017 Annual Connect Conference
June 29, 2017 to July 2, 2017 – Chicago, IL
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Volley for Mitchell
July 15, 2017 all day – Rockford, MI
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Friar Fight to End Duchenne Golf Tournament
July 29, 2017 all day – Thornapple Pointe Golf Club
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Mitchell's Run thru Rockford
August 19, 2017 all day – Rockford, MI
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