Nimi, how old is your son? Do you give him steroids? I'd like to warn you about the serious side effects of this drug, they are very important while the pseudo advantages are only temporary. This is for good reason that it is not accepted in France for instance. Do you know Pr. Nevo from Hadassa hospital? I went to him twice and don't intend to return. I didn't appreciate him at all.
Personnally I give my son green tea extracts, fish oil, reishi tinctura in white tea and massage with nigella oil.
I recently talked to Professor Tremblay from Quebec who is working on a revolutionary technique called meganucleases. He told me there is still much work to do and it may take a few years to be ready, if everything goes well.
I'm the mother of a 3.5 years old boy with Duchenne. I give him green tea extracts, have you heard about this natural medicine? I suggest you see the effects of epigallocatechine gallate on the clinical trials site, a current study will soon evaluate its efficacity on children. Have you also heard about byglican and Professor Tremblay's meganucleases technique?
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Nimi, how old is your son? Do you give him steroids? I'd like to warn you about the serious side effects of this drug, they are very important while the pseudo advantages are only temporary. This is for good reason that it is not accepted in France for instance. Do you know Pr. Nevo from Hadassa hospital? I went to him twice and don't intend to return. I didn't appreciate him at all.
Personnally I give my son green tea extracts, fish oil, reishi tinctura in white tea and massage with nigella oil.
I recently talked to Professor Tremblay from Quebec who is working on a revolutionary technique called meganucleases. He told me there is still much work to do and it may take a few years to be ready, if everything goes well.
Let's stay in touch,
Keren.
Nimi shalom,
I'm the mother of a 3.5 years old boy with Duchenne. I give him green tea extracts, have you heard about this natural medicine? I suggest you see the effects of epigallocatechine gallate on the clinical trials site, a current study will soon evaluate its efficacity on children. Have you also heard about byglican and Professor Tremblay's meganucleases technique?
All the best,
Keren (from Nethanya)
Dear Friend Brother,
Sorry for late reply,
Thanks for your valuable suggestion and medicine,I will try my best.
Thanks
Mehboob Ahmed
Dear Nimi Langer,
Thanks for your reply and Information about DMD & BMD research progress in Israel.
As your profile show you have 3 sons, and your son Hadas is only effected.
Before his birth you was know any thing about the decease.
do you use any kind of medicine for him to make him strong.
Thanks
Mehboob Ahmed
Hi,
This is Mehboob from Karachi Pakistan.I would like to share some information with you.
about DMD and BMD.
My son Nabeel Ahmed 17 years old with BMD is now on wheelchair.
Can I know what is progress now in your country about DMD and BMD.I have heard that Israel's researches and scientist are going very well.
please share with me about DMD progress in your country,
I think you will feel my heart feeling.
Thanks
Mehboob Ahmeed