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Nimi Langer
  • Male
  • Kibbutz Gesher Haziv
  • Israel
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Nimi Langer's Friends

  • adi hazan
  • Galia Ben Ishay
  • Moein
  • RAKTIM SINGH
  • Tracy Seckler
  • Dori
 

Nimi Langer's Page

Profile Information

About me:
Business man @ Lawyer,
About my family:
Three Boys, youngest suffer from DMD
Name(s) of child(ren)/individual(s) with Duchenne:
Hadas
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Kibbutz Gesher Haziv

Comment Wall (5 comments)

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At 4:50am on June 23, 2011, Galia Ben Ishay said…

Nimi, how old is your son? Do you give him steroids? I'd like to warn you about the serious side effects of this drug, they are very important while the pseudo advantages are only temporary. This is for good reason that it is not accepted in France for instance. Do you know Pr. Nevo from Hadassa hospital? I went to him twice and don't intend to return. I didn't appreciate him at all.

Personnally I give my son green tea extracts, fish oil, reishi tinctura in white tea and massage with nigella oil.

I recently talked to Professor Tremblay from Quebec who is working on a revolutionary technique called meganucleases. He told me there is still much work to do and it may take a few years to be ready, if everything goes well.

Let's stay in touch,

Keren.

At 2:34am on June 23, 2011, Galia Ben Ishay said…

Nimi shalom,

I'm the mother of a 3.5 years old boy with Duchenne. I give him green tea extracts, have you heard about this natural medicine? I suggest you see the effects of epigallocatechine gallate on the clinical trials site, a current study will soon evaluate its efficacity on children. Have you also heard about byglican and Professor Tremblay's meganucleases technique?

All the best,

Keren (from Nethanya)

At 3:04am on February 7, 2011, Nabeel Ahmed said…

Dear Friend Brother,

Sorry for late reply,

Thanks for your valuable suggestion and medicine,I will try my best.

 

Thanks

Mehboob Ahmed

 

At 5:10am on January 18, 2011, Nabeel Ahmed said…

Dear Nimi Langer,

Thanks for your reply and Information about DMD & BMD research progress in Israel.

As your profile show you have 3 sons, and your son Hadas is only effected.

Before his birth you was know any thing about the decease.

do you use any kind of medicine for him to make him strong.

Thanks

Mehboob Ahmed

 

 

At 10:58am on January 15, 2011, Nabeel Ahmed said…

Hi,

This is Mehboob from Karachi Pakistan.I would like to share some information with you.

about DMD and BMD.

My son Nabeel Ahmed 17 years old with BMD is now on wheelchair.

Can I know what is progress now in your country about DMD and BMD.I have heard that Israel's researches and scientist are going very well.

please share with me about DMD progress in your country, 

I think you will feel my heart feeling.

Thanks

Mehboob Ahmeed

 
 
 

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