My son has been on deflazacort for only 1 month. I know that one of the side effects is behavioural change (hopefully which will leave as he is on it longer). However, I miss my son. My little guy is…Continue
My name on Facebook is Naomi Clark-Desender. You will see my picture with an alien saying "Pee on Duchenne Muscular Dystrophy". I did try looking for you, but I couldn't find you!! Hopefully I'll see you there soon.
I didn't realize, until tonight, that you are from Ontario! I am in Manitoba. If you are on facebook, there are many of us moving there and discussing more of the every day issues. If you are on facebook, look me up!