am sorry nicole my mom was rush to the er and piece   of pork stuck in her throat 

 plus  issue with blood pressure .kimmy thank you for add me as your  friend. how has your day been how riley coping  with everyday. kimmy

 hey nicole i am happy things are going well,. how is riley doing in school, i  live  and train very hard to bring notice to duchenne  and rase tons so our boys have a fighting chance. kimmy

Hi Nicole,

I saw your questions regarding meeting mobility needs.  I  hope someone will eventually respond who lives in CA for more specific local recommendations. I currently live in the DC area and recently transplanted from IL.  I would recommend contacting your local MDA office if you haven't already and possibly look into Shriners Hospital.  We were able to get help to obtain a power assist wheelchair for my son through a wheelchair clinic at Shriners.  They helped us look into our options given our insurance and apply for a chair that would meet our family's need (at the time we were students and receiving health care through the state plan) We found out about the wheel chair clinic during one of our MDA's clinic appointments.  At MDA clinic they usually have a health services coordinator,social worker, PT and wheelchair rep/technician at part of their team you can talk to about specific medical needs your son has.   MDA also usually has a loan closet and may have a wheelchair you could use while you are trying to figure out what your son needs.  We started with Convaid folding wheelchair for my son (down side he could not propel himself and relied on others to push him).  At the time he needed only to rest periodically and was in and out of the chair throughout the day.  Now that he falls more frequently and gets tired easily he uses a power assist chair to get around school.  He loves the independence to get around the school's campus himself.  He is 10 and in 5th grade.  We currently do not have an accessible vehicle so we arranged special transport to and from school.  When we go out as a family we still use his folding chair which fits into the back of our hatchback.  We are just starting to look into accessible vehicles. Depending on your son's needs, some families choose to use a scooter for a time before obtaining a chair.  My son has some issues with his posture riding an adaptive bike- so we decided getting a chair he could drive himself was the best option for us.

best wishes to you and your family and feel free to contact me if I can be helpful :)Nana

 hey nicole its kimmy wondering how you are doing, just  want you to know am here for you   if you need anything. kimmy