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Nicole Chiaramonte Female Brooksville, FL United States: Favorite

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Nicole Chiaramonte's Friends

Started Aug 6, 2009 0 Replies 0 Favorites

Started this discussion. Last reply by Katherine M. Reynoldson Jun 25, 2009. 3 Replies 0 Favorites

About me:: I have one son that is 5 and and has DMD. One daughter that is 8 and two step-daughter that are 7 & 6. My fincee and I found out that our son Daniel had DMD a year and a half ago.

At 6:02pm on August 17, 2009, Danielle L Shoupe said…: Maybe will we see you at shands or the shriners in tampa someday. Christian also goes there for orthopedic stuff. We will be going there agian when all of the new parts for Christians chair comes in.

At 2:47pm on July 21, 2009, Danielle L Shoupe said…: forgot to add that we also go to the Shriner's hospital in Tampa every six months. We are currently awaiting new stuff for his power chair and will be making an appointment as soon as he gets these items added to his chair.

At 2:45pm on July 21, 2009, Danielle L Shoupe said…: I would definitely recommend Shands. My son only sees the pulmonogist(Dr. Schuler) she is great and has experience with DMD. He also sees a cardiologist there but have only had one appt with him and I don't recall his name right now. We se a nuerologist here in tallahasse but would not recommend him.

At 8:44pm on June 9, 2009, Kelvinsmom - Michelle said…: Hi Nicole. I have been in and out of the site lately and just noticed that you son has the same deletions as mine, 45-52, right? I hope to keep in touch and have information regarding our deletions that I'll share if you'd like. I'll add you as a friend, so we can talk privately. I'll be in Florida next week, so I may not be able to get back with you if you do write, but I'll try soon. Take care. Michelle

At 1:47pm on April 11, 2009, tracie said…: Hi Nicole, I was glad to see your name pop up on my wall! Please do submit an application to us at Christopher's Community. This year we won't be doing our fundraiser because of the economy, but we are still able to provide some assistance, depending on the need. Take care!! Tracie

At 8:47pm on March 23, 2009, Lelia Ginder said…: Nicole,
We live in Gainesville and we take our son to Cincinatti Children's Hospital to see Dr Wong. It is worth the travel. They have a comprehensive nueromuscular clinic there that specializes in treatment of Duchenne.

At 3:16pm on February 25, 2009, Windy Jackerson said…: Hi Nicole. I have never taken Skyler to see a Doctor at the MDA clinic. I take my son to UF Shands in Gainesville to see the Neurologist there. Shands is awesome. The Dr.'s name is Edgard Andrade. You may also want to contact Nemours Children clinic in Orlando. They have specialty doctors there that treat kids with DMD.

At 2:43pm on February 24, 2009, Leslie Guzman said…: Thanks Nicole - Could you please share his phone number? -

I am Mexican and I have a network of spanish speaking families with Duchenne boys, many of them don't speak english so I try to help them as much as I can - That is the source of my question.

I live in Cincinnati - I am Mexican - have 3 boys - only one wiht DMD (4 yrs old).

Bye - Leslie