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jiasusa5
  • Female
  • Plano, TX
  • United States
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jiasusa5's Discussions

Nada Chair S'port Backer or Kiddy up

Started this discussion. Last reply by Amar Kumar Sep 21, 2015. 1 Reply

Hi,I have to order Nada chair for my son,I was wondering which one would be better s'port backer or Kiddy up.If I order S'port backer ,do I need to buy stretch strips separate to use with it?Please…Continue

7 weeks pregnant and 2 sons with DMD

Started this discussion. Last reply by Shawn Sep 3, 2015. 2 Replies

Hi,I have 4 sons ,2 with DMD and 2 without DMD.I am a carrier and am pregnant again though I was on birth control. I am confused to carry or terminate the pregnancy as If God is giving me baby even…Continue

Deflazacort 30 mg batch J021 and batch J028 recall email.

Started this discussion. Last reply by Dakota Ferrazzi Mar 26, 2015. 7 Replies

I got Deflazacort 30 mg batch J021 and batch J028 recall email.Has anyone get the same email.Can anyone tell me what is the reason of this recall.I am worried as my son is using it for 3 months.Have…Continue

Our Deflazacort shipment is being hold by FDA in the post office,anyone experienced the same situation?

Started this discussion. Last reply by David Jan 19, 2015. 6 Replies

Our Deflazacort shipment is being hold by FDA in the post office.We have ordered it with doctor letter even then did not go though custom.The letter from FDA states that drug you are importing are…Continue

 

jiasusa5's Page

Latest Activity

jiasusa5 replied to Keith & Jill VE's discussion Emflaza (aka deflazacort) Approvals
"I have two sons with DMD.We have applied for Emflaza and denied from insurance .We will claim for the approval but the thing is I am up set is that it clearly stated in the denial letter to use alternative PREDNISONE( that has more side effects then…"
Nov 9

Profile Information

About me:
I m homemaker mother.
Name(s) of child(ren)/individual(s) with Duchenne:
Fozaan Fasih
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
plano
State:
Texas

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At 11:01pm on December 10, 2014, DEEPAK ARORA said…

Dear Najia.

Thanks for the information you share with me, i also plan to give steroids to my son, so can you please confirm the quantity of deflazacort you giving to your son,

 
 
 

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