Hi everybody!I want to give my in may four years old boy idebenone!I order it from HBC. 180 Tabletts 50 mgAt the moment the idebenone catena trial Sounds very good,is the product from HBC really the…Continue
Hi Nadya! I received your post about your company wanting to make a donation. Absolutely every donation that is made will get a receipt. If you make the donation online, then the receipt is generated automatically. If you send in a check, just include instructions as to where you want the receipt mailed. Thank you so much and let me know if you have any her questions.
Thank you for commenting...I am really happy that you requested me and have a very similar case with your son as I do...if you don't mind me asking...how is your son doing? What is he classified as now that he is a little bit older? Thank you.
Hello Nadja, I was very happy to recieve your message. Santiago is doing ok, thank you.
Seven years ago, Santiago's legs got swollen, first doctors thought it was a immunologic disease, then they said it was something viral. But I always thought something was wrong.
Santiago has always had learning disabilities, so we had gone to many doctors. The last neurologist told us that maybe he had a muscular problem. That was like five years ago. Two years ago Santiago had a biopsy, but iit got contaminated. I was furious. Well, finally this January, he had a genetic test. He had 7 exons duplicated, the genetist said it was duchenne.
hi nadja its me juan don't know if you remember me, in the past I'm the one who told you that Germany has a clinical site as well. we took our son to see if he qualifies for the Cialis trial it will be a few weeks to know if he qualifies, have you looked into this trial for your son? have you heard anything good about it ? have you commented this to your doctor?