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Started this discussion. Last reply by Brian Denger Oct 28, 2011. 4 Replies 0 Favorites
Hi everyone. Our sweet son has his first appointment with the DMD Clinic at our Childrens Hospital. Do you have suggestions for me as to what questions to ask, wisdom to offer on what to expect or…Continue
Started this discussion. Last reply by Ofelia Marin Nov 30, 2011. 9 Replies 0 Favorites
I know many families don't know till later in their child's life that they have DMD. However, if you think back (or for those that knew at birth) can you tell me if you noticed that moving your sons…Continue
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Your son is adorable.
I love the pictures.
Your son is absolutely adorable Mrs. Wood! It sounds like you have a solid support system in place, which is so good to hear!
I hope being able to connect with other families who are affected by Duchenne on this site is empowering for you and your family. Also, if you haven't already, please consider registering on PPMD's main site, so that we can send you an information packet tailored to parents of boys who have recently been diagnosed: http://www.parentprojectmd.org/site/Survey?ACTION_REQUIRED=URI_ACTION_USER_REQUESTS&SURVEY_ID=5323
Don't ever hesitate to contact us by phone, email, or message if you ever need anything!
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