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Mrs. Joseph Wood
  • Female
  • Topeka, KS
  • United States
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Mrs. Joseph Wood's Discussions

First Appointment

Started this discussion. Last reply by Brian Denger Oct 28, 2011. 4 Replies

Hi everyone. Our sweet son has his first appointment with the DMD Clinic at our Childrens Hospital. Do you have suggestions for me as to what questions to ask, wisdom to offer on what to expect or…Continue

Curious

Started this discussion. Last reply by Ofelia Marin Nov 30, 2011. 9 Replies

I know many families don't know till later in their child's life that they have DMD. However, if you think back (or for those that knew at birth) can you tell me if you noticed that moving your sons…Continue

 

Mrs. Joseph Wood's Page

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Dalibor Randjelovic favorited Mrs. Joseph Wood's profile
May 10

StaffBrian Denger replied to Mrs. Joseph Wood's discussion First Appointment
"Hello Mrs. Wood, Parents have already offered some great tips.  I'd like to add a few and reemphasize some points based on my family's experiences. As your son's primary care provider (By default we all undertake this role…"
Oct 28, 2011
Susan Parzymieso replied to Mrs. Joseph Wood's discussion Curious
"Well, I have something similar, but still different to share.  My son is a twin and was diagnosed at 2 mos with plagiocephaly and torticollis.  He was extremely stiff on his entire left side and was not moving his head past midline. …"
Oct 27, 2011
Mrs. Joseph Wood replied to Mrs. Joseph Wood's discussion First Appointment
"I love these ideas. I am going to print them off.    Thank you for taking time to share!"
Oct 27, 2011
Ivy Scherbarth replied to Mrs. Joseph Wood's discussion First Appointment
"Dear Mrs. Joseph Wood, A caveat: my advice comes from my own experience and I request that you take it with a grain of salt. You and your family are unique and no one is more of an expert on your needs than you are.You are embarking on a set of…"
Oct 27, 2011
Mrs. Joseph Wood's discussion was featured

First Appointment

Hi everyone. Our sweet son has his first appointment with the DMD Clinic at our Childrens Hospital. Do you have suggestions for me as to what questions to ask, wisdom to offer on what to expect or any other helpful tips. i would love to feel ready for this appointment and look forward to hearing what you each have to share.See More
Oct 27, 2011
4 Comments
Mrs. Joseph Wood posted a discussion

First Appointment

Hi everyone. Our sweet son has his first appointment with the DMD Clinic at our Childrens Hospital. Do you have suggestions for me as to what questions to ask, wisdom to offer on what to expect or any other helpful tips. i would love to feel ready for this appointment and look forward to hearing what you each have to share.See More
Oct 26, 2011
4 Comments
Mrs. Joseph Wood replied to Mrs. Joseph Wood's discussion Curious
"Thank you everyone. He is doing MUCH better with his headaches. He still doesn't move his arms much however, we've learned to buy bigger clothing so he doesn't have to stretch his arms. He's "discovered" his tongue and…"
Oct 25, 2011
Wyatt's Mommy, Melissa replied to Mrs. Joseph Wood's discussion Curious
"Glad to hear you found a doctor to help.  "
Oct 25, 2011
Wyatt's Mommy, Melissa replied to Mrs. Joseph Wood's discussion Curious
"Our son was diagnosed at 10 months (pretty young) and I know that he never experienced any of that.  That just sounds horrible for the little guy.  He is beautiful! I hope you figure out what's going on.  Take…"
Oct 25, 2011
Wyatt's Mommy, Melissa left a comment for Mrs. Joseph Wood
"I love the pictures.   "
Oct 25, 2011
Mrs. Joseph Wood's 2 photos were featured
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Oct 14, 2011
Liisa Underwood replied to Mrs. Joseph Wood's discussion Curious
"Jeanette, I'm so happy you have some answers. Half the battle is definitely knowing. What are they able to do for him then?"
Oct 11, 2011
Mrs. Joseph Wood replied to Mrs. Joseph Wood's discussion Curious
"Oh, thank you Lisa! I like what you said "sometimes a sneeze is just a sneeze".       "
Oct 11, 2011
lisa burke replied to Mrs. Joseph Wood's discussion Curious
"Hi, I'm sorry, i meant to reply to you earlier but got distracted by the kids. I'm glad you found out what was causing your little ones discomfort. We had a similar thing, when my eldest son was a couple of weeks old he struggled to move…"
Oct 11, 2011
Mrs. Joseph Wood replied to Mrs. Joseph Wood's discussion Curious
"Thank you for your reply, Lisa. I had actually been checking every day to see if someone had tried to offer some wisdom. My sweet baby has been hurting. We took him to the doctor today and learned he has shortened biceps (explaining why he…"
Oct 10, 2011

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At 2:58pm on October 25, 2011, Wyatt's Mommy, Melissa said…

I love the pictures. 

 

At 8:11pm on October 7, 2011,
StaffPPMD said…

Your son is absolutely adorable Mrs. Wood! It sounds like you have a solid support system in place, which is so good to hear!

 

I hope being able to connect with other families who are affected by Duchenne on this site is empowering for you and your family. Also, if you haven't already, please consider registering on PPMD's main site, so that we can send you an information packet tailored to parents of boys who have recently been diagnosed: http://www.parentprojectmd.org/site/Survey?ACTION_REQUIRED=URI_ACTION_USER_REQUESTS&SURVEY_ID=5323

 

Don't ever hesitate to contact us by phone, email, or message if you ever need anything!

800-714-5437 - info@parentprojectmd.org

Profile Information

About me:
I am the wife to my best friend, Joe, and the mother to 11 children. I enjoy gardening, reading and laughing with my children. We love to cook up pretty and delicious meals together.
About my family:
We live on a farm of 16 acres with a variety of animals. We love to garden and play out doors and travel. Our youngest son has DMD. He is now 3 1/2 months old and was Dx at birth.Daniel, our baby, loves to sit on the front porch, looking around at the farm, as I rock him. My husband owns his own business so as a family we help him and travel with him.
Name(s) of child(ren)/individual(s) with Duchenne:
Daniel
Age(s) of child(ren)/individual(s) with Duchenne:
0-3
City and State:
Topeka
Country:
USA

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