Moria McMillen's Page

Moria McMillen commented on Pat Furlong's blog post Open letter to Misty VanderWeele

"I feel so uncertain and halting.. Living out a normal Monday.. trying to imagine what is unfolding for you today.. But I know how very strong you are.. With everything I am I am trying to send you comfort and love."

Jan 21, 2013

Moria McMillen replied to Jennipher Poffenberger's discussion Confused

"Hi Jennifer, Getting the diagnosis is so hard. When our son was diagnosed, I felt like the air had been sucked off of the entire planet. I faught just to breath for a week. Some of the things that we have done for our son is to focas on the…"

Oct 30, 2012

Moria McMillen replied to Sif Hauksdóttir's discussion Deletion of exons 3-12 in frame but still duchenne? in the group Deletions

"Hi Sif, Our Son is missing exxons 2-21. We visited Dr. Kevin Flanigan at Nationwide Children's Hospital in Ohio to get some of the same answers. What he told us that we did not know, is that Essons work in groups of 3. To demonstrat this, he…"

Oct 30, 2012

Moria McMillen commented on PPMD's group Deletions

"Keith and Andrea, Thank you both so much for the information! I will sign up for the new group. "

Jun 6, 2012

Moria McMillen commented on PPMD's group Deletions

"Andrew, Thanks so much for the link to the Diagram! Acording to the diagram, if my son is missing Exxons 2-21, exxons 1 and 22 should fit together just fine, making it an in-frame deletion, meaning that he should have a much more milder form of…"

Jun 6, 2012

Moria McMillen posted photos

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May 4, 2012

Moria McMillen posted a photo

Disney Trip 2012

May 4, 2012

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Moria McMillen commented on PPMD's group Deletions

"Hi everyone, My son Nicky has deletions of exons 2-21. We live in Alaska, so there isn't a huge amount of Duchenne patients locally. I am a bit confused because I e-mailed one of the Genetic specialist that spoke in the webinar about…"

May 3, 2012

Moria McMillen replied to Patti Frank's discussion Exon 20? in the group Deletions

"Hi everyone, My son Nicky has deletions of exons 2-21. We live in Alaska, so there isn't a huge amount of Duchenne patients locally. I am a bit confused because I e-mailed one of the Genetic specialist that spoke in the webinar about…"

May 3, 2012

Moria McMillen commented on PPMD's group Early Years (diagnois-age 6)

"Hi everyone! My son Nicky was potty trained at 3, but he has more frequent accidents, because if he is busy, or resting, it's so much more of an effort for him to get up and go to the bathroom. I talk to him about it, but don't…"

May 3, 2012

Moria McMillen joined Misty VanderWeele's group