Moria McMillen
  • Female
  • United States
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Moria McMillen's Friends

  • Jacqueline M McConnell
  • Pat Furlong
 

Moria McMillen's Page

Latest Activity

Moria McMillen commented on Pat Furlong's blog post Open letter to Misty VanderWeele
"I feel so uncertain and halting.. Living out a normal Monday.. trying to imagine what is unfolding for you today.. But I know how very strong you are.. With everything I am I am trying to send you comfort and love."
Jan 21, 2013
Moria McMillen replied to Jennipher Poffenberger's discussion Confused
"Hi Jennifer, Getting the diagnosis is so hard. When our son was diagnosed, I felt like the air had been sucked off of the entire planet. I faught just to breath for a week.  Some of the things that we have done for our son is to focas on the…"
Oct 30, 2012
Moria McMillen replied to Sif Hauksdóttir's discussion Deletion of exons 3-12 in frame but still duchenne? in the group Deletions
"Hi Sif, Our Son is missing exxons 2-21. We visited Dr. Kevin Flanigan at Nationwide Children's Hospital in Ohio to get some of the same answers. What he told us that we did not know, is that Essons work in groups of 3. To demonstrat this, he…"
Oct 30, 2012
Moria McMillen commented on PPMD's group Deletions
"Keith and Andrea, Thank you both so much for the information! I will sign up for the new group.  "
Jun 6, 2012
Moria McMillen commented on PPMD's group Deletions
"Andrew, Thanks so much for the link to the Diagram! Acording to the diagram, if my son is missing Exxons 2-21, exxons 1 and 22 should fit together just fine, making it an in-frame deletion, meaning that he should have a much more milder form of…"
Jun 6, 2012
Moria McMillen posted photos
May 4, 2012
Moria McMillen posted a photo
May 4, 2012
Moria McMillen commented on PPMD's group Deletions
"Hi everyone, My son Nicky has deletions of exons 2-21. We live in Alaska, so there isn't a huge amount of Duchenne patients locally. I am a bit confused because I e-mailed one of the Genetic specialist that spoke in the webinar about…"
May 3, 2012
Moria McMillen replied to Patti Frank's discussion Exon 20? in the group Deletions
"Hi everyone, My son Nicky has deletions of exons 2-21. We live in Alaska, so there isn't a huge amount of Duchenne patients locally. I am a bit confused because I e-mailed one of the Genetic specialist that spoke in the webinar about…"
May 3, 2012
Moria McMillen commented on PPMD's group Early Years (diagnois-age 6)
"Hi everyone!  My son Nicky was potty trained at 3, but he has more frequent accidents, because if he is busy, or resting, it's so much more of an effort for him to get up and go to the bathroom. I talk to him about it, but don't…"
May 3, 2012
Moria McMillen joined Misty VanderWeele's group
May 3, 2012
Moria McMillen joined PPMD's group
May 3, 2012
Moria McMillen joined Kari's group
May 3, 2012
Moria McMillen joined Dee's group
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Mom's Cafe

A group for Mom's who like to vent and talk about life with DMD kids
May 3, 2012
Moria McMillen joined MicahsDaddy's group
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Medication/Supplement Journals

A place to keep a journal of what medication(s)/supplement(s) you are giving to your child.See More
May 3, 2012
Moria McMillen joined Danielle Bath's group
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Duchenne Smiles

A Duchenne smile is a True smile, cannot be faked and exemplifies true enjoyment.
May 3, 2012

Profile Information

About me:
I live in Alaska, and Own an Architectural Firm with my Husband. Between us, we have 6 Children.
About my family:
Our Familly enjoys hiking, and fishing in the summer in Kenai AK.
Name(s) of child(ren)/individual(s) with Duchenne:
Nicholas McMillen
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Wasilla AK

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Comment Wall (2 comments)

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At 12:12pm on February 24, 2012,
Staff
Pat Furlong
said…

Hello Moria,   Nice to meet you virtually. Please let me know if there is ever something I might do to help.  SIncerely, Pat

At 11:34pm on October 13, 2011,
Staff
PPMD
said…

Welcome Moria! Look at that beautiful smile in your picture.. Love it! :)

 

I hope being able to connect with other families on this site who are affected by Duchenne is empowering for you and your family. Also, if you haven't already, we hope you consider registering on PPMD's main site, so that we can send you an information packet tailored to parents of boys who have recently been diagnosed: http://www.parentprojectmd.org/site/Survey?ACTION_REQUIRED=URI_ACTION_USER_REQUESTS&SURVEY_ID=5323

 

Don't ever hesitate to contact us by phone, email, or message if you ever need anything!

800-714-5437 - community@parentprojectmd.org

 
 
 

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