Improved Muscle Function in Duchenne Muscular Dystrophy through L-Arginine and Metformin: An Investigator-Initiated, Open-Label, Single-Center, Proof-Of-Concept-StudyPatricia Hafner, Ulrike Bonati,…Continue
"Rahul, My son's doctor told me that prednisone is very important, it can extend child's ambulatory ability and prevents child's spine bend. other aux drugs just offer some auxliary effects,L-arginine too.But ,this kind of amino acid…"
"Moen how many days did you give this combination? Did you see any side effects. Did you give the dose as L-arginine (3 x 2.5 g/d) and metformin (2 x 250 mg/d). Which brand of L-arginine you used? My son is…"
"I had given my son this combination before he was enrolled in Myostatin trial for Pfizer because it is not allowed in the trial
I think that there was an improvement and my son was having the courage to do tasks he was not doing it before,also he…"
I am eagerly waiting for yr comments on losartan . Last week I just consulted my son's neurologist abt using Losartan for him who is 4 yr old and not on any steriods . She said it is ok as far as safety issues are concerned , but before prescribing ( as losartan here in India is available only against prescription ) she would like to know more abt it from those as young as my son who are already using it , so just remembered u as your son is not very old , he is just around 6 yrs if am not wrong . Further she would even like to put it before the ethics committee of her hospital and start systematic clinical trial with losartan on young DMD kids . But to do all this she needs some more data . She is ready to think out of box and take up the challenges .
Would appreciate hearing from u at earliest in this regard
Just read yr below comment on Amrit's page . Just want to know more abt Losartan . My email id firstname.lastname@example.org . My 4 yr old is DMD . Doctors here in Mumbai India think that he does not require steroids at the moment . So we are thinking of some other options to slow down the progress including idebenone . Has exchanged some posts with Joshua's Mom abt idebenone as well watched yr comments on it . If u can upbreast me abt losartan it will be really nice of u
Hi,my son is about 6 years.He is on the waiting list for this trial.we are from London ON where the ACE 031 is being conducted.I called my son's neurologist who is also running the trial here,and he told me that my son is supposed to enter the trial on June.I had the impression that they will go on with this trial.Moreover,It seems that this drug is working.Anyway,I am going now to get more news and if you like I can provide you with the updates.
My son uses:DFZ,ECGC,LOSARTAN (ON MY OWN),Vit D,fish oil,multivit,Coq10,Taurine(aminoacid),Calcium.
I highly recommend Losartan,and I bet that it might stop fibrosis+reduce the side effects of DFZ.
I do everything I can do then rely on God because doctors and medicine are just causes in any treatment,but God is the CAUSATIVE to this treatment because he is the omnipotent and merciful.
I don't know if this drug is available in Israel. How old is your son? I give mine (wich is 3 and a half) green tea extracts, reishi, fish oil and nigella oil. A current study will shortly determine the efficacity of green tea, see the clinical trials site. Have you heard about the Pr. Tremblay's meganucleases technique? It gives much hope. All the best,