Mike O
  • Male
  • Sammamish, WA
  • United States
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Mike O's Discussions

Etiplersen will cost $300,000

Started this discussion. Last reply by Andrew Kerr Sep 23, 2016. 1 Reply

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Telling his classmates about DMD

Started this discussion. Last reply by Brenda Sep 2, 2016. 1 Reply

In an effort to address his limitations and keep him safer, we have elected to have our son talk to his second grade class about his diagnosis. Any advice for telling this age group about DMD? I've…Continue

Why a ‘miracle’ drug exists but you can’t have it yet

Started this discussion. Last reply by Lynne Nicholson Nov 15, 2014. 1 Reply

Thought you all might be interested in this article from MosaicContinue

Ice bucket challenge

Started this discussion. Last reply by Judy Lumbourne Nov 18, 2014. 3 Replies

I'm sure many of you noticed that ALS foundation recently got some wonderful publicity (and presumably more funds). It'd be awesome if DMD community could come up with an idea that would gain similar…Continue

 

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Profile Information

Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Seattle
State:
WA

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