Rencently our 12 years son has aproved treatment with Translarna by compasive spanish law use, with the aproval of de EMA (European Medical Agency) for stop codon's DMD 5 years or more older ambulatory boys. He has begun his low dose three times per day since 20 th of february 2015.
I wanted to know if anyone else are being treated with this drug and how does go with it.
Please write me and tell your experiences. I'll promise answer with our own experience as soon as posible.
Thank you very much.