Michelle Scaglione
  • Female
  • Staten Island, NY
  • United States
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Michelle Scaglione's Discussions

Constant UTI

Started Jun 30, 2015 0 Replies

HiCan anyone tell me if their son is having the same problem that my son is having and why?  He has for the past 2 years having recurring UTI infections.  He is 22 and in a wheelchair and on…Continue

Trach

Started this discussion. Last reply by Michelle Scaglione Apr 11, 2014. 6 Replies

Maybe someone here can help me.  My mom has a trach.  She has a lot of mucus that comes up and has to be suctioned all day and night.  can anyone here tell me (if their son if he has a trach) has the…Continue

 

Michelle Scaglione's Page

Latest Activity

Michelle Scaglione replied to Sharon Wood's discussion homecare beds/mattress
"My son has the ProBed and he loves it.  His knees are contracted and we have not had any problems with the bed being comfortable with this."
Nov 23, 2016
Michelle Scaglione replied to Candice Wright's discussion Anxiety and Stress in Large Public Elementary School: How Much is Too Much? Have You Pulled Your Son From Mainstream School and Transferred Him to. Smaller, Alternative School? Advice appreciated.
"I found out years later one of Johnnys teacher kept putting him in the time out chair.  If I saw her now I would punch her face in.  This was before his diagnose. Michelle"
Sep 23, 2016
Michelle Scaglione replied to Johnny's discussion Is there a specific bed or mattess that is recommended to help with sleep
"We have the ProBed for our son. It works great.  I don't know what insurance you have and if it would be approved but our son loves it. Michelle"
Sep 7, 2016
Michelle Scaglione replied to Holly Homa's discussion refusing to use the bathroom
"I don't know if this will work for you but it worked for my son.  He has 2 older brothers that were in school with him so the teacher had one of them take him to the bathroom.  Does he have a para or maybe another boy who would help…"
Jun 2, 2016
Michelle Scaglione commented on Dave Click's blog post INSULTS, F-BOMBS, AND PARKING STRIPES
"People are sickening. We have been through what you and your son went through in many ways.  One can only hope someday she is in the same "sorry ass" way as our sons and you get to see it and she gets to live it! I know my…"
Feb 19, 2016
Michelle Scaglione posted a discussion

Constant UTI

HiCan anyone tell me if their son is having the same problem that my son is having and why?  He has for the past 2 years having recurring UTI infections.  He is 22 and in a wheelchair and on steroids.  We cant seen to find any answer why they keep coming back.  Any help would be appreciated.thanks,michelleSee More
Jun 30, 2015
Michelle Scaglione replied to Karen Barnett's discussion At What Age Did Your Child Stop Walking?
"Each child is different I believe due to their mutations.  Years ago I was told by my sons dr that each one progresses differently.  I have a friend whose son has a duplication mutation and he walked until about 15 I believe.  My son…"
Jun 9, 2015
Michelle Scaglione replied to Candice Wright's discussion Anxiety and Stress in Large Public Elementary School: How Much is Too Much? Have You Pulled Your Son From Mainstream School and Transferred Him to. Smaller, Alternative School? Advice appreciated.
"I knew it was time.  I would watch him walk with his para down the long hall way for 3 years.  As I watched this day  I saw how he was struggling and stopping .  It was too sad and painfully to watch. I ran up the hall and…"
May 6, 2015
Michelle Scaglione replied to danielle's discussion our boys and control in the bathroom
"Hopefully they can help him."
May 6, 2015
Michelle Scaglione replied to danielle's discussion our boys and control in the bathroom
"My son is 22 and has control of his bowels.  Have you asked his dr?  I was under the impression that this isn't affected."
May 6, 2015
Michelle Scaglione replied to danielle's discussion our boys and control in the bathroom
"Does your son have a UTI?  My son has recently been dealing with it and that's the only time he cant hold it.  He doesn't get symptoms either so I didn't know he even had one."
May 6, 2015
Michelle Scaglione replied to Candice Wright's discussion Anxiety and Stress in Large Public Elementary School: How Much is Too Much? Have You Pulled Your Son From Mainstream School and Transferred Him to. Smaller, Alternative School? Advice appreciated.
"At 12 I started my son on home instruction with a teacher.  He requested it.  He couldn't walk long distances at that point and didn't want to use a scooter in school.  He did well at home.  But of course he no longer…"
May 6, 2015
Michelle Scaglione replied to Angelique's discussion Toilet Training
"Well my son also wasn't fully trained until he was 5.  I didn't know he had DMD at the time and now I think he possibly knew his weakness to balance on the toilet.  He had a fear that he would fall in.  Be patient.  He…"
May 6, 2015
Michelle Scaglione replied to ameer h. anan's discussion portable Mechanical Ventilator
"My son has the Pulmonetic LTV 1100.  It works great.  He uses it via mouth to take breaths and with his mask.  It also has a battery life of 6hrs. And an internal battery of 45min.  He also air stacks with it."
May 6, 2015
Michelle Scaglione replied to wainaina muiruri's discussion Cough Assist Devices
"My son had pneumonia in 2012.  His cough was weak.  The cough assist provides enough force in and out to bring up the secretions down in the bottom of lungs. I have an Ambu bag and when my son was in the hospital with pneumonia I…"
Mar 24, 2015
Michelle Scaglione replied to wainaina muiruri's discussion Cough Assist Devices
"If your son has a weak cough you need the cough assist.  If your son gets a cold and cant cough up his secretion he will get pneumonia.  You need to contact your dr to get a script with a letter explaining your sons needs."
Mar 24, 2015

Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
Johnny
Age(s) of child(ren)/individual(s) with Duchenne:
19 or older
City:
Staten Island
State:
New York

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