Michelle Meunier
  • Female
  • New Port Richey, FL
  • United States
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Need help

Started this discussion. Last reply by Michelle Meunier Jul 23, 2009. 3 Replies

 

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Michelle Meunier favorited Annie Kennedy's blog post ACTION ALERT: Tell Your Senator to Vote NO on Today's Healthcare Repeal!
Jul 25, 2017
Michelle Meunier replied to Guillermo Rivera's discussion Who benefits from exon skipping?
"From what my sons neurologist said it may very well help all of them . If it helps one category there is no reason to believe it wont work for the others . That was a comment he made about 6 months ago at our appointment .  "
Jul 24, 2013
Michelle Meunier shared Ryan Fischer's blog post on Facebook
Jul 8, 2013
Michelle Meunier shared Ryan Fischer's blog post on Facebook
Jul 8, 2013
Michelle Meunier commented on Ryan Fischer's blog post July 9, 2013: One Voice from Capitol Hill to the FDA
"Please do this , help save my son and all others facing this diseases . This is huge and you can make a difference ! END DUCHENNE !"
Jul 8, 2013
Michelle Meunier and michael mcmurray are now friends
Jan 23, 2011
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Michelle Meunier joined Jennifer Collier's group
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Florida Families

Families from Florida that are affected by DMD/BMD
Jul 23, 2009
Michelle Meunier posted a discussion

Need help

My family and I live in Florida near Tampa and I have been unsuccessful finding any fundraisers or events near us . I would like to start an event if there isnt any . Can anyone tell me if you know of things in Florida or where to find such info ? Thanks
Jul 23, 2009
Michelle Meunier posted photos
Jul 23, 2009
Michelle Meunier is now a member of PPMD Community
Jul 7, 2009

Profile Information

About me:
I am a happy wife of 16 years and a proud mother of two . I am an aethitician not employed at this time . Im enjoying being a mom right now .
About my family:
My husbands name is Joe and he is a Manager of a popular supermarket chain here in Florida where we live . Our beautiful daughter Jordan is 12 going in Middle school soon . Our loving son Joey is almost 7 and is going to be in first grade . Joey has recently been diagnsed with Duchennes Muscular Dystrophy .
Name(s) of child(ren)/individual(s) with Duchenne:
Joey Meunier
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
New Port Richey

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Comment Wall (8 comments)

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At 1:39am on May 23, 2010, Leslie Guzman said…
Hi Michelle,

We have a little boy Diego, who is 5 with DMD and he takes Deflazacort (Calcort) - 12 mg daily. We just arrived to Disney in Orlando,Florida and realized that we left his medicine at home!!!!!! I understand he cannot be without Deflazacort more than 24 hours and Diego does not have medicine for tomorrow. By any chance, is your son using Deflazacort? If he is can we buy or borrow any from you?? We are willing to drive and go anywhere to get the medicine and we can replace within 10 days guaranteed. Sorry to bother you wiht this! but are trying to avoid major interruptions for the boys and extendended family due to this...

Thanks for your kind attention to this,

Leslie
Here is my email and phone number: guzman.l@pg.com or (513) 765-9416
At 8:34am on January 16, 2010, Michelle Meunier said…
Please dont apologize Im not on here much either . Hope your son had a great Birthday . We went to our first walk on Dec. 6 and it was great . Im still hoping to find or create some events here close to our home in New Port Richey because its not always easy for everyone to travel with such busy lives . How is your son doing if I may ask ? Ive been trying to get Joey in the upcoming Exon Skip trial but so far he doesnt qualify but there will be more oppertunities coming up .
At 12:43am on January 16, 2010, Danielle L Shoupe said…
sorry about the late responses or repeat response but I only get on here about 1 a month.
At 12:42am on January 16, 2010, Danielle L Shoupe said…
We have a few fundraisers here in Tallahasse. There is a baseball game between the firefighters that raise money and can't member who else. We also have the boot collection every year. And of course the local MDA telethon.
At 12:40am on January 16, 2010, Danielle L Shoupe said…
My son just turned 11 in Dec.
At 12:13am on December 7, 2009, Danielle L Shoupe said…
my son is 10 he will be 11 on the 13th of this month. We will be at the Shriner's on the 9th.
At 1:18am on December 4, 2009, Danielle L Shoupe said…
Hi my son and I live in Tallahassee we arfe in tampa every 6 months at the shriner's hospital.
At 11:02am on July 23, 2009, Nick Tullio said…
Hi Michelle. We live in Bradenton and our son Grayson is 6-years old. We are also interested in getting together with our families in the area. Would love to chat sometime.
 
 
 

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