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Michelle Brown
  • Female
  • Port Saint Lucie, FL
  • United States
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Exons affected 8-24

Started this discussion. Last reply by Joshua's mom May 4, 2014. 8 Replies

Hi,My son has exons 8-24 affected and was hoping for some advice on anything that might be able to help. He is currently on steroids. He is still ambulatory but  seems to struggle.ThanksContinue

 

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Joshua's mom replied to Michelle Brown's discussion Exons affected 8-24
"No, Joshua does not take coq10. He did before the Idebenone though. The idebenone acts like a super coq10. As for creatine, we eat a high protein diet which stimulates it. The heart issues regarding taking creatine made us want to stimulate it…"
May 4, 2014
Michelle Brown replied to Michelle Brown's discussion Exons affected 8-24
"Does Joshua take Coq10 or creatinine? "
May 4, 2014
Michelle Brown replied to Michelle Brown's discussion Exons affected 8-24
"Thank you for your help. We eat pretty much the same way. He takes Prednisone instead and we do a lot of stretching."
May 3, 2014
Joshua's mom replied to Michelle Brown's discussion Exons affected 8-24
"Joshua is 11. On my page is a list of the medications and supplements he takes. He was just fitted for a wheelchair yesterday for longer distances and crowds but still walks with his feet flat on the ground.  Josh gets physio twice a day or as…"
May 3, 2014
Michelle Brown replied to Michelle Brown's discussion Exons affected 8-24
"He is 8. On his report it doesn't state if they are duplicated. Its says 8-24 deletion/duplicated so Im not sure. How old is your son and has anything helped him?"
May 3, 2014
Joshua's mom replied to Michelle Brown's discussion Exons affected 8-24
"Joshua has the same affected exons but they are duplicated. How old is your son?"
May 2, 2014
Michelle Brown replied to Michelle Brown's discussion Exons affected 8-24
"I was wondering if there was anything specific involving his deletions. And if there was any way I might be able to get clarification on out of frame and in frame deletion. The neurologist he see's feels that he is doing really well for his…"
May 2, 2014
Keith Van Houten replied to Michelle Brown's discussion Exons affected 8-24
"Do you mean things to help right now, or things in the research pipeline?"
May 2, 2014
Michelle Brown posted a discussion

Exons affected 8-24

Hi,My son has exons 8-24 affected and was hoping for some advice on anything that might be able to help. He is currently on steroids. He is still ambulatory but  seems to struggle.ThanksSee More
May 2, 2014
Michelle Brown is now a member of PPMD Community
May 8, 2013

Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
Brayden
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Port St. Lucie
State:
Fl

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