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Michele Di Iorio
  • Male
  • VASTO
  • Italy
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Michele Di Iorio's Discussions

idebenone

Started Sep 6 0 Replies

Are You giving idebenone to your kids?does it really help?does anyone uses it instead of steroids?

frequent falls

Started this discussion. Last reply by Brian Denger Apr 6. 1 Reply

Anyone experience many falls?even a few every day?

vitamin k2

Started this discussion. Last reply by JoonGoo Lee May 2. 1 Reply

Does anyone supplement with vitamin k2?at what doses?What are The results on bone density?

 

Michele Di Iorio's Page

Latest Activity

Michele Di Iorio posted a discussion

idebenone

Are You giving idebenone to your kids?does it really help?does anyone uses it instead of steroids?
Sep 6
JoonGoo Lee replied to Michele Di Iorio's discussion deflazacort dosage
"I can speak English very little.. But I hope it helps you. The typical capacity of deflazacort is 0.9 mg per 1 kg.And this is the standard every day.However, depending on your child's condition, the dose may vary. Usually Deflazacort (Calcort :…"
May 2
Brian Denger replied to Michele Di Iorio's discussion frequent falls
"Michele, I believe your question is in regards to a child with Duchenne muscular dystrophy.  If that is true, as a child becomes weaker and struggles to walk, balance is impaired and falling becomes more frequent.   The use of a…"
Apr 6
Michele Di Iorio posted discussions
Apr 5
Michele Di Iorio is now a member of PPMD Community
Apr 5

Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
Mattia
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
VASTO
State:
Italy

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