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Michele Di Iorio
  • Male
  • VASTO
  • Italy
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Michele Di Iorio's Discussions

idebenone

Started this discussion. Last reply by Bruce Ward 4 hours ago. 1 Reply

Are You giving idebenone to your kids?does it really help?does anyone uses it instead of steroids?

frequent falls

Started this discussion. Last reply by Brian Denger Apr 6. 1 Reply

Anyone experience many falls?even a few every day?

vitamin k2

Started this discussion. Last reply by JoonGoo Lee May 2. 1 Reply

Does anyone supplement with vitamin k2?at what doses?What are The results on bone density?

 

Michele Di Iorio's Page

Latest Activity

Bruce Ward replied to Michele Di Iorio's discussion idebenone
"Michele, have a look at this post for info on COQ10 which is similar http://community.parentprojectmd.org/m/discussion?id=1187424%3ATopic%3A242131 COQ10 is not the same as Idebenone but they are believed to have similar action. My reading is that…"
4 hours ago
Michele Di Iorio posted a discussion

idebenone

Are You giving idebenone to your kids?does it really help?does anyone uses it instead of steroids?
Sep 6
JoonGoo Lee replied to Michele Di Iorio's discussion deflazacort dosage
"I can speak English very little.. But I hope it helps you. The typical capacity of deflazacort is 0.9 mg per 1 kg.And this is the standard every day.However, depending on your child's condition, the dose may vary. Usually Deflazacort (Calcort :…"
May 2
Brian Denger replied to Michele Di Iorio's discussion frequent falls
"Michele, I believe your question is in regards to a child with Duchenne muscular dystrophy.  If that is true, as a child becomes weaker and struggles to walk, balance is impaired and falling becomes more frequent.   The use of a…"
Apr 6
Michele Di Iorio posted discussions
Apr 5
Michele Di Iorio is now a member of PPMD Community
Apr 5

Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
Mattia
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
VASTO
State:
Italy

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