I have five children, four boys and one girl. I do not currently work as I lost my job after 12 years.
About my family:
Of my 5 children, three of them live with me and my husband, Jerry. Jordan, 14, Chris, 9, and Jessi, 7. Chris is the only son who has DMD. My two oldest sons, Michael, 22, lives in San Leandro and John, 19, is staying with Grandma and Grandpa in FL. My first three boys are from first marriage and fourth boy and daughter are with Jerry.
Name(s) of child(ren)/individual(s) with Duchenne:
Christopher (in picture)
Age(s) of child(ren)/individual(s) with Duchenne:
San Leandro, CA
Comment Wall (8 comments)
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Funny this is the first day I've checked in here in a long time( months actually), and there was your note from today. We just started going to Strouber too! Anyhow, I'd love to get together. I know a couple of moms with boys the same age in the East Bay (finally, after years of looking) if you're looking to network a bit or meet buddies for your son. How's your son? Mine is mostly OK but recently started having a really hard time getting around. It can be so depressing but I'm trying to keep it all together. I'll send you my e-mail and phone # to your inbox. Are you on Facebook? There are tons of DMD moms on there from California (mostly Sac and S. CA). Anyhow, hope to hear from you soon,
My son is almost 8 and we live in Berkeley. I'd love to talk to you more some time. Have you known about your son a very long time? We found out when my son was 6, so it seems like we've known less time than a lot of other boys his age). I hope his health is good. Do you go to one of the MDA clinics in SF? I'd love to get my son together with other DMD kids, if you're interested some time.
In health and happiness,
I am sorry to heara you have a son with dmd. I think if you join the California group you will find a lot of useful information. For example, you can get a medical discount on your PG&E bill if you apply. You can call 1-800-743-5000. You will need to have your son's doctor sign the application. It is a medical baseline discount.
I hope this site offers you a lot of information and resources.
I went to chabot college out in that area. I lived in San Leandro for a bit. I like San Leandro.